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treatment

R. Coleman Lindsley, MD, PhD

Lindsley, R. Coleman
Clinical Fellow
Hematology and Oncology Dana-Farber Cancer Institute

Dr. Robert Coleman Lindsley, M.D., PhD. is a physician scientist at Dana-Farber Cancer Institute, specializing in research topics associated with MDS. His career has developed in conjunction with his interest in how disease evolves, and in turn, how new and existing therapies can interrupt the process of disease progression. The

Mikkael Sekeres, MD, MS

Sekeres, Mikkael
Physician Liaison in Hematology and Chief of the Division of Hematology in the Department of Medicine
Sylvester Comprehensive Cancer Center and University of Miami

Mikkael A. Sekeres, MD, MS has been Medical Advisory Board Co-Chair since 2004. He is currently the Physician Liaison in Hematology and Chief of the Division of Hematology at the Sylvester Comprehensive Center at the University. Previously, Dr. Sekeres was the professor of medicine, director of the leukemia program, and Vice Chair for

Richard M. Stone, MD

Stone, Richard M
Professor of Medicine, Harvard Medical School
Dana-Farber Cancer Institute

Dr. Stone received his MD in 1981 from Harvard Medical School, his internal medicine residency training at Brigham and Women's Hospital, and his hematology-oncology fellowship at DFCI. He has performed numerous laboratory and clinical studies on acute leukemia and related disorders, and frequently participates in grand rounds worldwide.

Patient Advisory Council

The AAMDSIF Patient Advisory Council (PAC) was created in 2008. Its purpose is to serve as a resource to the AAMDSIF staff in the development and review of patient education materials, programs and services. Members of the PAC include doctors, nurses, patient educators, patients and caregivers, all of whom have an interest in supporting the needs of people living with aplastic anemia, MDS, PNH or another bone marrow failure disease. Review by the PAC provides patients and their families with the full confidence that they are receiving the most accurate, reliable and up-to-date information from the Foundation.

How do I get my medical records from a doctor?

If you want a copy of your medical records, you  must submit a written request to the hospital or the doctor's office. The law requires that patients provide doctors with written authorization to disclose medical records or the information contained in them. Some hospitals have their own form that needs to be completed. Patients may receive copies of their medical records, however the originals must remain in the physician's or hospital's file.  Please consult with your physician's office for access to digital records.