treatment
San Diego Family Takes Action for Awareness
Person's Name:
Amy Ohton
My husband David’s journey with MDS began in April 2014, when it was discovered almost by chance while we were on vacation. David was bitten by a brown recluse spider and had a very severe reaction to it. He had to be hospitalized, which is when he got his first blood test in years. The doctor noted that his blood counts were low and, while he didn’t rule out that the spider bite might have affected the counts, there was a possibility of myelodysplasia.
Bone Marrow Disease(s):
Content source:
Bart Scott, MD
Scott, Bart
Assistant Member
Fred Hutchinson Cancer Research Center
Fighting PNH While Helping PNH Patients
Person's Name:
Joe Ellenberger
I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.
I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.
Bone Marrow Disease(s):
Content source:
Selinexor (KPT-330)
Saved by Her Twin Sister
Person's Name:
Kathryn Bradley
I was your typical 14 year old teenager who always enjoyed spending time with friends and playing sports. On and off for about two years, my parents would take me to see different doctors to figure out why I had aches and pains, stomach issues and fatigue.
Bone Marrow Disease(s):
Content source: