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AAMDSIF sponsors live education events throughout the year. This includes satellite symposia at annual medical association meetings, as well as smaller live regional events where community-based health professionals can hear from leading experts. The International Bone Marrow Failure Disease Scientific Symposium is our biennial professional meeting held near Washington, DC. LEARN MORE
AAMDSIF holds two types of educational conferences - those devoted to the needs of patients and families and those tailored for health professionals. Both long-term survivors and the newly diagnosed come to patient conferences for updates from leading experts, to learn new skills and to connect with each other. Our professional events include regional conferences, as well as top-tier global scientific meetings.
By 2030, when all baby boomers will be at least 65 years old, the population of adults in this age group is projected to be 71 million (Administration on Aging, 2007). These represents a more than a 100% increase in the number of persons 65 years and older. That might sound like great news, however who will care for them? Caregivers.
For over 30 years, AAMDSIF has provided financial support for research that leads to new insights into the causes of bone marrow failure diseases and to the development of new therapeutic approaches. Since 1989 we have awarded over $5.5 million in funding 100 grantees.
All patients are different and all have unique needs. But there are special circumstances to consider for patients in certain categories, such as children, older adults and veterans. Caregivers should educate themselves on what's most important when helping these patient groups learn how to cope with their conditions.
Connecting with other patients and families can be a powerful and uplifting experience. Our networks let you learn from others, share your journey, get and give support and make new friends. You have the option of connecting on a one-to-one basis or with a group. You also choose the way you prefer to interact - by phone, in person or online.
There are many therapies and approaches doctors use to treat bone marrow failure disease patients. Some treatments are used for several different diseases. Others are used only for aplastic anemia, MDS or PNH. Every person's condition is unique, and each situation is different. That's why your health care team must look carefully at your specific case before recommending what's right for you.
