Myelodysplastic Syndromes (MDS)

Caregiver Stress

Don’t deny or ignore the fact that being a caregiver will have an effect on you.

Recent Diagnosis

Parents of children newly diagnosed with a bone marrow failure bone marrow failure: A condition that occurs when the bone marrow s

The National Family Caregivers Association's Director of Caregiver Wellness Programs, Jane Meier Hamilton, RN, MSN, has been a nurse for 40 years and family caregiver for 20 years. In a recent interview, she offered advice for family caregivers.

Is it true to say that many people don’t realize that they are caregivers?

When bone marrow bone marrow: The soft, spongy tissue inside most bones.

Because patients need help in different ways, we offer a variety of support services. From the patient/family HelpLine and support networks to live conferences, online classes and volunteer events, our aim is to positively impact as many lives as we can. Our community members contribute to that goal by sharing their own inspirational Stories of Hope, supporting each other's need to stay positive and motivated.

Diseases like aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells

MDS classification systems divide MDS into subtypes based on the results of blood and bone marrow bone marrow: The soft, spongy tissue inside most bones.

A correct diagnosis is essential to getting the right treatment - a complicated problem for a rare disease for which there is no single test. Because doctors see so few MDS cases, they need to conduct a variety of tests to determine what the patient’s disease is and is not.

Doing a Medical History

To understand what is causing your symptoms and low blood counts, your doctor will start with a detailed medical history. Your doctor may ask:

The symptoms of MDS, also known as Myelodysplastic Syndromes Myelodysplastic Syndromes: (my-eh-lo-diss-PLASS-ti

MDS, or Myelodysplastic syndromes Myelodysplastic syndromes: (my-eh-lo-diss-PLASS-tik SIN-dromez) A group of di