MDS Causes
Doctors can’t identify a specific cause in 9 out of 10 MDS cases. These are called “de novo” MDS, meaning arising without a known cause.
Myelodysplastic Syndromes (MDS)
Movies Spotlight Lives of Patients, Families
Two dramatic new films that vividly depict what it’s like to live with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the b
Phil Scheinberg, MD
Institution
Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Phil Scheinberg is Chief of Clinical Hematology at the Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil. He received his medical degree in 1995 at the University of Santo Amaro in Sao Paulo, Brazil and completed his residency (1997-2001) at Mount Sinai Medical Center in Miami Beach, FL where he became Medical Chief Resident. Dr. Scheinberg held a Hematology/Oncology Fellowship (2001-2005) before becoming a staff clinician at the Hematology Branch of the National Heart, Lung, and Blood Institute (NHLBI) at the National Institutes of Health (NIH) in Bethesda, MD. During his
Policymakers Act on Rare Disease Community’s Behalf
When the federal government is handing out money, it’s all too common for rare diseases to be overlooked since, by definition, they affect far fewer people. But December was a good month for our community. The U.S.
Clinical Trials Report for January 2016
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
South River Hope, Steps & A Cure: June 7, 2015
Notable Numbers
- 130+ Walkers and Runners
Clinical Trials Report for December 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
Clinical Trials Report for November 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
2016 Health Insurance Enrollment Begins November 1st
Open enrollment for health insurance begins again on November 1st and millions of Americans have signed up to make sure they are in the loop about important coverage deadlines, as well as newly available prices and plans in 2016. As we move into the third year of the Affordable Care Act (ACA), AA&MDSIF wants to highlight a few of the issues that patients with rare diseases should be aware of:
MDS—The Past 40 Years. A Look at the Emerging Awareness and Classification of Myelodysplastic Syndromes.
You may be surprised to learn that our current understanding of MDS only began in the 1970s. Although related studies were conducted for many decades prior, myelodysplastic syndromes (MDS) was not well known and it was further complicated by common use of the term ‘pre-leukemia’ to describe it. The relationship of MDS to similar hematologic conditions was poorly understood.
1976: In the beginning, there was FAB.