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Edward W. Cowen, M.D., M.H.Sc., leads the NIH Dermatology Consultation Service, conducts independent and collaborative research, and oversees the continuing medication education-accredited Dermatology Grand Rounds, Branch Clinical Fellowship and resident education programs. He is an internationally recognized expert in cutaneous graft-versus-host disease and serves as Director on the American…
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Dr. George Chen is an Associate Professor of Oncology at Roswell Park Cancer Center and associate professor of medicine at Jacobs School of Medicine and Biomedical Sciences. State University of New York at Buffalo. He completed his residency and a fellowship in Houston, TX at Baylor College of medicine and an additional fellowship in Palo Alto, CA at Stanford University. He is board certified in…
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Amer Zeidan’s primary research interest is in
myelodysplastic syndromes
myelodysplastic syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low blood cell…
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Dr. Eric Yang is currently an Associate Clinical Professor of Medicine at the Ronald Reagan University of California, Los Angeles Medical Center. He obtained his undergraduate and medical degrees at the University of Illinois at Chicago College of Medicine, and completed his internal medicine residency and cardiology fellowship at Harbor-UCLA Medical Center, where he served as chief fellow.…
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The Global PNH Patient Registry is a collaborative effort between the
Aplastic Anemia
Aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when…
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Geordy’s youth was an active one. Baseball, Soccer, and Hockey filled his days, even competing in the Little League World Series!
He was active in his family’s church, too. When offered the opportunity to go on a Youth with a Mission (YWAM) program to Australia, he traveled from his home in British Columbia to participate. Once there, the spark of ministry became a calling, so…
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In this webinar, Dr. Jan Bewersdorf discusses the latest research presented at EHA and ASCO on MDS and AML. This is an advanced presentation.
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In this webinar, Dr. Phillip Scheinberg will discuss the latest research presented at EHA about
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens…
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In this webinar, Dr. Jorg Dietrich will discusses the diagnosis of brain fog/chemo brain and how patients can manage this symptom of disease and its treatments.
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In this recording, Dr. Srinivasa Sanikommu discusses complications that can occur during a PNH patient's lifetime and the treatment options available to patients.
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We help you cope with your battle against
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
disease…
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Here are the session recordings and the presentations for the 2023 Omaha Patient and Family Hybrid Conference.
Aplastic Anemia Non-Transplant Therapies and Clinical Trials, from Omaha Patient and Family Hybrid Conference 2023
High Risk MDS Non-Transplant Therapies Current Therapies and Clinical Trials Omaha Patient and Family Hybrid Conference 2023
Low-Risk MDS (Myelodysplastic…
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In this recording, Dr. Lacey Williams discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.
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