paroxysmal nocturnal hemoglobinuria (PNH) | Page 22 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Patient, Educator, and Volunteer

Person's Name: 
Stephen King

A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.

 “I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”

Early Diagnosis, Treatment and Emphasis on Self-Advocacy

Content source: 

Paroxysmal nocturnal hemoglobinuria clones in children with acquired aplastic anemia: a multicentre study

Author(s): 
Timeus F, Crescenzio N, Longoni D, Doria A, Foglia L, Pagliano S, Vallero S, Decimi V, Svahn J, Palumbo G, Ruggiero A, Martire B, Pillon M, Marra N, Dufour C, Ramenghi U, Saracco P
Primary Author: 
Timeus F
Journal Title: 
PLoS One
Original Publication Date: 
Jul 2014

A multicentre study evaluating the presence of glycosil phosphatidyl-inositol (GPI)-negative populations was performed in 85

Long-term outcome of fludarabine-based reduced intensity allogeneic hematopoietic cell transplantation for debilitating paroxysmal nocturnal hemoglobinuria

Author(s): 
Pantin J, Tian X, Geller N, Ramos C, Cook L, Cho E, Scheinberg P, Vasu S, Khuu H, Stroncek D, Barrett J, Young NS, Donohue T, Childs RW
Primary Author: 
Pantin J
Journal Title: 
Biol Blood Marrow Transplant
Original Publication Date: 
May 2014

Paroxysmal nocturnal hemoglobinuria (PNH) is characterized by intravascular hemolysis,