Oral Iptacopan Monotherapy in Paroxysmal Nocturnal Hemoglobinuria
Background: Persistent hemolytic anemia hemolytic anemia: Anemia due primarily to the excessive hemolysis or destruction of red blood cells
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Danicopan
VOYDEYA is a prescription medicine used along with ravulizumab or eculizumab eculizumab: Eculizumab (Soliris ®) is given as an IV into a vein at the doctor’s office or at a special cen
Biosimilars
What is a Biosimilar?
A biosimilar is a type of biologic medication. The term “biosimilar” means that the medication is highly similar to the already approved brand name biologic (“originator” medication). Biosimilars are not generic versions of the original biologic.
Folate and Folic Acid
Folate Folate: (FOE-late) A B-vitamin that is found in fresh or lightly cooked green vegetables. It helps the bone marrow make normal blood cells. Most people get enough folate in their diet.
Clinical Trials
Clinical research Clinical research: A type of research that involves individual persons or a group of people.
Heparin
Heparin
Heparin:
Heparin is in a class of medications called anticoagulants ('blood thinners'). It works by decreasing the clotting ability of the blood.
Enoxaparin
Enoxaparin
Enoxaparin:
Enoxaparin is in a class of medications called low molecular weight heparins.
Deferoxamine
Deferoxamine Deferoxamine: Deferoxamine is an iron-binding agent that belongs to a class of drugs known as heavy metal antagonists.
Prednisone
Prednisone Prednisone: Prednisone a man-made version of a hormone produced naturally by the adrenal gland that can help reduce inflammation and stop allergic responses.
2024 Tampa Patient and Family Conference
Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family conference has been cancelled.
We will be announcing future webinars so stay tuned for more information from us.
Our thoughts are with all of those impacted by these devastating storms.