Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2024-December
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Family/Caregiver Virtual Support Group - 2024 December
AAMDSIF is pleased to announce that we will host a support group for those caregiving for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh)
Pediatric Parents Virtual Support Group - 2026 - November
This virtual support group is designed to support pediatric parents whose children have been diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare
Learn about PNH (Paroxysmal Nocturnal Hemoglobinuria)
Original Publication Date
Article Source
AAMDSIF Web Content
Recently, there has been increased mention of paroxysmal nocturnal hemoglobinuria (PNH) in the news and on social media. As part of our mission, the Aplastic Anemia and MDS International Foundation (AAMDSIF) works with leading PNH specialists to provide patients, their support…
Caner Saygin, MD
Institution
University of Chicago
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Fatigue Management
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Timothy Pearman, PhD
Jenny Finkel
In this webinar, Dr. Tim Pearman discusses fatigue and how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level. This was an interactive session.
Advances in Treating PNH
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jamile M. Shammo, MD, FASCP, FACP
In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.