Paroxysmal Nocturnal Hemoglobinuria (PNH)
Jason Farrar, MD
Institution
Arkansas Children’s Hospital
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric
Nutrition and Bone Marrow Failure
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease. You can submit questions in advance by emailing help@aamds.org.
Ashwin Kishtagari, MD
Institution
Vanderbilt University Medical Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
David Hermel, MD
Institution
Scripps Clinic
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
David Hermel, MD, is a hematologist and medical oncologist who specializes in malignant hematology with an interest in the use of novel therapies, such as cellular immunotherapy and bone marrow transplantation, for the treatment of blood and immune system disorders. As a member of the Scripps Blood and Marrow Transplant Program, he works with a multi-disciplinary team of professionals to provide hematopoietic stem cell transplantation to his patients. Dr. Hermel’s clinical practice is focused on the treatment of blood cancers, such as acute and chronic leukemias, multiple myeloma, Hodgkin’s
Non-therapeutic Study Non-therapeutic Study: The purpose of a non-therapeutic study is to increase the understanding of a disease or condition through observation, data collection, or other methods. A non-therapeutic study does not provide treatment or intervention for participants. This type of research contributes to general knowledge that may benefit others in the future by improving treatment or developing new therapies. Home Reported Outcomes in PNH: A Mobile App-Based, Prospective, Observational Program to Evaluate Disease Burden and Treatment Patterns in Paroxysmal Nocturnal Hemoglobinuria in the US
Image
Status
Enrolling
Study Date (Range)
-
Bone Marrow Disease(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Age Group
18 years and older
This study aims to capture the full spectrum of symptoms, treatment utilization, and overall Health-Related Quality of Life (HRQoL) experienced by PNH patients. As a participant, you will track what you're noticing about your health in the Folia Health app once per week for 6…
Exploring treatment strategies for paroxysmal nocturnal hemoglobinuria: an overview of registered clinical trials
Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemoglobinuria: (pa
Complement inhibition in paroxysmal nocturnal hemoglobinuria: From biology to therapy
Complement inhibitors are the mainstay of paroxysmal nocturnal hemoglobinuria paroxysmal noctur
Real-world experience of pegcetacoplan in paroxysmal nocturnal hemoglobinuria
Pegcetacoplan Pegcetacoplan: EMPAVELI® is the first PNH treatment that binds to complement protein C3.