paroxysmal nocturnal hemoglobinuria (PNH) | Page 21 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Paroxysmal nocturnal hemoglobinuria and telomere length predicts response to immunosuppressive therapy in pediatric aplastic anemia

Author(s): 
Narita A, Muramatsu H, Sekiya Y, Okuno Y, Sakaguchi H, Nishio N, Yoshida N, Wang X, Xu Y, Kawashima N, Doisaki S, Hama A, Takahashi Y, Kudo K, Moritake H, Kobayashi M, Kobayashi R, Ito E, Yabe H, Ohga S, Ohara A, Kojima S
Primary Author: 
Narita A
Journal Title: 
Haematologica
Original Publication Date: 
Aug 2015

Acquired

Eculizumab in Pregnant Patients with Paroxysmal Nocturnal Hemoglobinuria

Author(s): 
Kelly RJ, Höchsmann B, Szer J, Kulasekararaj A, de Guibert S, Röth A, Weitz IC, Armstrong E, Risitano AM, Patriquin CJ, Terriou L, Muus P, Hill A, Turner MP, Schrezenmeier H, Peffault de Latour R
Primary Author: 
Kelly RJ
Journal Title: 
N Engl J Med
Original Publication Date: 
Sep 2015

BACKGROUND:

“Mom, it’s too late. I’m dying.”

Person's Name: 
Jake Sanborn

My husband Rick and I knew Jake was not feeling well. He kept denying it and saying he was fine. A bloody nose scared me, and then I remembered how my brother-in-law had them as a child and thought it was hereditary. Then his high school said he had another. He began to ask us if he looked pale. We said that he did. He also was coughing and seemed lethargic. We encouraged him to go to the doctor, but he said he was fine.

BMT Meant 'It Could Finally Be Over '

Person's Name: 
Mariah McHenry

At the last race of my high school cross country career, I stood on the starting line with one hundred other girls and repeated only one thought - “just finish”. I didn’t think about winning. I didn’t think about beating any records or trying to beat anyone, for that matter. I just wanted to finish. I wanted to look back and know that I did this one thing for me. I wanted to know that I did something that scared me, something that no one expected me to do, and something that I wasn’t even sure I could do. I wanted to power through this race and finish.