paroxysmal nocturnal hemoglobinuria (PNH) | Page 20 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

San Diego

Thank you for attending the 2016 San Diego Patient and Family Conference.

Event Date: 
Sat, 09/17/2016
Conference Event Type: 

Fighting PNH While Helping PNH Patients

Person's Name: 
Joe Ellenberger

I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.

I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.

Kasiani Myers, MD

Myers, Kasiani
Associate Professor, UC Department of Pediatrics
Cincinnati Children’s Hospital Medical Center

Dr. Kasiani Myers received her medical degree from Case Western Reserve University and pursued training in pediatrics and hematology/oncology at Cincinnati Children’s Hospital Medical Center. After completion of her postdoctoral training, she joined the faculty of the Division of

Interim analysis of post-marketing surveillance of eculizumab for paroxysmal nocturnal hemoglobinuria in Japan

Ninomiya H, Obara N, Chiba S, Usuki K, Nishiwaki K, Matsumura I, Shichishima T, Okamoto S, Nishimura JI, Ohyashiki K, Nakao S, Ando K, Kanda Y, Kawaguchi T, Nakakuma H, Harada D, Akiyama H, Kinoshita T, Ozawa K, Omine M, Kanakura Y
Primary Author: 
Ninomiya H
Journal Title: 
Int J Hematol
Original Publication Date: 
Jul 2016

Data characterizing the safety and effectiveness of


Thank you for attending the 2016 Raleigh Patient and Family Conference. Below you will find copies of all the presentations.

Event Date: 
Sat, 07/16/2016
Conference Event Type: