paroxysmal nocturnal hemoglobinuria (PNH) | Page 12 | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Biting into the Elephant

Person's Name: 
Ellen O. Kalinosky

I believe that a story is the shortest distance between two people. While this is my story, it is not just mine, and I did not do any of this alone. In April 1983, my husband Joe and I were 25 years old and attending to the required pre-marital blood work. Next thing we knew, we were sitting in a doctor’s office because my blood counts were abnormally low. They told us there was something wrong, but they didn’t know what it was.

Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis

Person's Name: 
Heather Vega

“I was fortunate to have a medical background, because with it I was able to help diagnose myself with