paroxysmal nocturnal hemoglobinuria (PNH) | Page 13 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Paroxysmal nocturnal hemoglobinuria testing in patients with myelodysplastic syndrome in clinical practice-frequency and indications.

Author(s): 
Wong SA, Dalal BI, Leitch HA
Primary Author: 
Wong SA
Journal Title: 
Curr Oncol
Original Publication Date: 
Oct 2018
Background:

Complement-driven anemia: more than just paroxysmal nocturnal hemoglobinuria.

Author(s): 
Merrill SA, Brodsky RA
Primary Author: 
Merrill SA
Journal Title: 
Hematology Am Soc Hematol Educ Program
Original Publication Date: 
Nov 2018
Atypical hemolytic uremic syndrome (aHUS); hemolysis, elevated liver function tests, and low platelets syndrome; and transplant-associated thrombotic microangiopathy are related conditions, in that many patients harbor germline heterozygous mutations in genes that regulate the alternative pathway of complement (APC).

Fatigue, symptom burden, and health-related quality of life in patients with myelodysplastic syndrome, aplastic anemia, and paroxysmal nocturnal hemoglobinuria.

Author(s): 
Escalante CP, Chisolm S, Song J, Richardson M, Salkeld E, Aoki E, Garcia-Manero G.
Primary Author: 
Escalante CP
Journal Title: 
Cancer Med
Original Publication Date: 
Feb 2019
BACKGROUND:

2019 March for Marrow 5K Run & Walk Los Angeles

Come celebrate the 10th Annual March for Marrow Los Angeles with Honorary Chair Connie Britton. Our 5K and Walk have the distinction of taking place along the beautiful stretch of shoreline that is part of the Long Beach Shoreline Marina. With the iconic Queen Mary in the background, the course is scenic, flat, and regardless of weather, ideal for beating one's personal best.

Event Date: 
Sat, 04/27/2019
Community Event Type: 

Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness

Person's Name: 
Sarah Nesheim

 

 

My Diagnosis

In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.

Find Out More:

5th Annual Rare but Real Golf Tournament

Come out for a good time, a little golf, and many opportunities to take home money and prizes and help Breezy raise money for PNH. Over the last four years we have raised over $34,000 and hope to continue this trend! Bring on the sun and the fun!

To donate money toward the event or sign up please contact Brianne Sandborn at (517) 243-2020 or sandbornb@gmail.com.

Event Date: 
Sat, 08/29/2020
Community Event Type: