Paroxysmal Nocturnal Hemoglobinuria (PNH)

2025 AAMDSIF Bone Marrow Failure Summit Paroxysmal Nocturnal Hemoglobinuria Expert Panel

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Regis Peffault de Latour, MD, PhD
Dr. Austin Kulasekararaj
Morag Griffin, MBChB, FRCPath
Carlos M. De Castro, III, M.D.
Watch PNH experts at the 2025 AAMDSIF Bone Marrow Failure Summit tackle the latest science and research on choosing the optimal complement inhibition strategy in PNH. This session is moderated by Phillip Scheinberg, MD from Hopital A Beneficencia in Sao Paulo, Brazil. Session…

Oppose 57% Cut to Congressionally Directed Medical Research Programs

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Community Impact
Oppose 57% Cut to Congressionally Directed Medical Research Programs Take Action Before House Vote Oppose 57% Cut to Congressionally Directed Medical Research Programs Tell your Members of Congress to Vote NO on The Full-Year Continuing Appropriations and Extensions Act, 2025 As…

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Join us in endorsing the recent appeal to Congress with the following actions. Your voice is important to continue these services for patients and provide opportunities for researchers to find the cures.

Read the letter to Congress from Research!America, with AAMDSIF and 600 other organizations, here.

Letter on the Bipartisan Senate FY25 Labor-HHS-Education Appropriations Bill

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Coalition Action
AAMDSIF is Taking a Stand for NIH Research Research programs led by the National Institutes of Health (NIH) forge the way for life-saving new treatments for rare diseases such as aplastic anemia, MDS, and PNH. With clinical research locations throughout the U.S., researchers and…
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