paroxysmal nocturnal hemoglobinuria (PNH) | Page 2 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Fatigue, symptom burden, and health-related quality of life in patients with myelodysplastic syndrome, aplastic anemia, and paroxysmal nocturnal hemoglobinuria.

Author(s): 
Escalante CP, Chisolm S, Song J, Richardson M, Salkeld E, Aoki E, Garcia-Manero G.
Primary Author: 
Escalante CP
Journal Title: 
Cancer Med
Original Publication Date: 
Feb 2019
BACKGROUND:

2019 March for Marrow 5K Run & Walk Los Angeles

Come celebrate the 10th Annual March for Marrow Los Angeles with Honorary Chair Connie Britton. Our 5K and Walk have the distinction of taking place along the beautiful stretch of shoreline that is part of the Long Beach Shoreline Marina. With the iconic Queen Mary in the background, the course is scenic, flat, and regardless of weather, ideal for beating one's personal best.

Event Date: 
Sat, 04/27/2019 -
6:30am to 12:00pm
Community Event Type: 

Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness

Person's Name: 
Sarah Nesheim

 

 

My Diagnosis

In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.

Find Out More:

3rd Annual Rare but Real PNH Golf Tournament

Come out for a good time, a little golf, and many opportunities to take home money and prizes and help Breezy raise money for PNH. Over the last two years we have raised over $16,000 for PNH research and hope to continue this trend! Bring on the sun and the fun!

Event Date: 
Sat, 08/25/2018 - 10:00am
Community Event Type: 

2nd Annual Donna Box Memorial Golf Tournament

Join us for the 2nd Annual Donna Box Memorial Golf Tournament!

  • 8:30am Shotgun Start
  • $100 per golfer
  • 18 hole scramble, cart, range balls, continental breakfast and lunch
  • 1st, 2nd, and 3rd place prizes
  • Door prizes
  • Silent Auction
  • 50/50 Raffles

Please email donnaboxmemorial@gmail.com with questions or registration information.
Please register by August 3, 2018.

Event Date: 
Mon, 08/20/2018 - 8:30am
Community Event Type: 

2018 March for Marrow Walk Miami

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow Walk Miami in memory of Jennifer Zighelboim. This year we move to a new walk location - Historic Virginia Key Beach Park! Festivities include a food truck and live music, as well as a day of fun connecting with fellow patients and families affected by

Event Date: 
Sat, 05/12/2018 -
10:00am to 1:00pm
Community Event Type: