Myelodysplastic Syndromes (MDS)

Fayetteville (GA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the second Tuesday of each month from 5:00 to 6:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/fayettefsg/index.html
If you have any questions or would like more information about the group, please contact - Mark Flanagan at (770) 719-6007.

Tucker (GA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the first Tuesday of each month from 7:00 to 8:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/TKR1FSG/index.html
If you have any questions or would like more information about the group, please contact - Kim Stump-Sutliff at (770) 982-5382.

Miami (FL) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the second Monday of each month from 5:30 to 7:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/form179/index.html
This group is facilitated by Rosa M. Caiseda Acantilado.

Fort Lauderdale (FL) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the fourth Thursday of each month from 4:00 to 5:30pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/HCFL/index.html
This group is facilitated by Phil Fusca, LCSW.

Orlando (FL) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the first Tuesday of each month from 3:00 to 4:00pm. Registration is required to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/form209/index.

This group is facilitated by Brittany Hahn, MSW, LCSW, ACHP-SW.

Jacksonville (FL) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets the fourth Thursday of each month from 6:00 to 8:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/jaxfsg/index.html
 

Clinical Trials and Children

Until recently, children were rarely included in studies of medical treatments. As a result, much is still unknown about how children respond to drugs, some biologics (such as gene therapy) and medical devices. According to the U.S. Food and Drug Administration (FDA), only 20-30% of approved drugs have actually been labeled for use in children.

Enfield (CT) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This group meets on the first Thursday of every month from 6:00 to 7:30pm. Registration is required to receive the login information for the group. To register, please email - survivorshipprogram@gmail.com
This group is facilitated by Kara Sawyer, RN, BSN, and Jay Burton, DO.

Website Feedback

Please use this feedback form to report website issues only. For other issues concerning patients and families, please email help@aamds.org or use the Patient and Family Helpline here.