Bone Marrow Transplant
A bone marrow transplant (BMT) bone marrow transplant (BMT): A procedure where bone marrow stem cells are c
Myelodysplastic Syndromes (MDS)
Iron Chelation
Iron chelation therapy Iron chelation therapy: (kee-LAY-shun) A drug therapy to remove extra iron from the body.
Growth Factors
Growth factors Growth factors: Growth factors are naturally occurring hormones in your body that signal your bone marrow to make more of certain types of blood cells.
Blood Transfusions
A blood transfusion blood transfusion: A procedure in which whole blood or one of its components is given to a person through an intravenous (IV) line i
Blood Clot Treatment
Blood clots are very dangerous. If you have a blood clot blood clot: A mass of blood that forms when platelets stick together. Harmful blood clots are more likely to happen in PNH.
2024 Philiadelphia, PA, Patient and Family Conference
The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
Watch these recordings from conference sessions:
2023 New Haven Patient and Family Conference
On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT. Find recordings or materials from this conference here.
Session Recordings:
High-Risk MDS from the 2023 Patient and Family Conference in New Haven, CT
Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lourdes Mendez, MD, PhD
Dr. Lourdes Mendez explains High-Risk MDS, or Myelodysplastic Syndromes, in detail for patients and families from the 2023 Patient and Family Conference in New Haven, CT. Learn about this condition and treatment options by watching now.
2nd Annual DEI Symposium for Bone Marrow Failure Care
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
This symposium provides updates on the most recent advances in the pathophysiology, diagnosis and clinical management of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), secondary acute myeloid…