Education
Diseases like aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells
Myelodysplastic Syndromes (MDS)
MDS Types
MDS classification systems divide MDS into subtypes based on the results of blood and bone marrow bone marrow: The soft, spongy tissue inside most bones.
MDS Diagnosis
A correct diagnosis is essential to getting the right treatment - a complicated problem for a rare disease for which there is no single test. Because doctors see so few MDS cases, they need to conduct a variety of tests to determine what the patient’s disease is and is not.
Doing a Medical History
To understand what is causing your symptoms and low blood counts, your doctor will start with a detailed medical history. Your doctor may ask:
MDS Symptoms
The symptoms of MDS, also known as Myelodysplastic Syndromes Myelodysplastic Syndromes: (my-eh-lo-diss-PLASS-ti
Myelodysplastic Syndromes (MDS)
MDS, or Myelodysplastic syndromes Myelodysplastic syndromes: (my-eh-lo-diss-PLASS-tik SIN-dromez) A group of di
MDS Causes
Doctors can’t identify a specific cause in 9 out of 10 MDS cases. These are called “de novo” MDS, meaning arising without a known cause.
Movies Spotlight Lives of Patients, Families
Two dramatic new films that vividly depict what it’s like to live with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the b
Phil Scheinberg, MD
Institution
Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Phil Scheinberg is Chief of Clinical Hematology at the Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil. He received his medical degree in 1995 at the University of Santo Amaro in Sao Paulo, Brazil and completed his residency (1997-2001) at Mount Sinai Medical Center in Miami Beach, FL where he became Medical Chief Resident. Dr. Scheinberg held a Hematology/Oncology Fellowship (2001-2005) before becoming a staff clinician at the Hematology Branch of the National Heart, Lung, and Blood Institute (NHLBI) at the National Institutes of Health (NIH) in Bethesda, MD. During his
Policymakers Act on Rare Disease Community’s Behalf
When the federal government is handing out money, it’s all too common for rare diseases to be overlooked since, by definition, they affect far fewer people. But December was a good month for our community. The U.S.
Clinical Trials Report for January 2016
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.