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Rosalie Rifkin, Active Grandmother from Tarzana, California

Person's Name: 
Rosalie Rifkin

I was diagnosed with MDS in about 2003 at age 63.  I am now 72 years old and will be married 52 years in June.  I have not taken medication for the last three years.  I go to a wonderful doctor at UCLA who is doing research on MDS.  I feel fine and I am not excessively tired.  My

Bone Marrow Disease(s): 
Content source: 
eBulletin / eInsider (volunteer vibe)

Sexuality and Intimacy

Your body is fatigued from fighting a disease; you may be taking strong medication; your outlook on life has changed. For most people, it's natural for sex to take a backseat in these circumstances. Nevertheless, intimacy is a quality-of-life issue that patients can and should discuss with their doctors if it becomes a problem. It's wise for patients to be gentle with themselves and remember that there are many ways to express intimacy.   

Emotional Health

No one is prepared for the shock of learning they have a serious disease. But in the aftermath of diagnosis, patients can and do learn how to adjust to their condition. With helpful AAMDSIF resources, they can learn about their illness, build their own support system and connect with their peers. But before that happens, patients have to deal with a range of powerful emotions.  

Fatigue

Ongoing fatigue is a major issue in the lives of most bone marrow failure patients. A variety of factors contribute to this condition, and it's important for patients to recognize that it should be reported to their doctors and not overlooked as an ordinary side effect. Learn more about fatigue and what you can do about it.   

Exercise

Everyone who regularly exercises reaps the advantage of a more efficient metabolism, which effectively improves both body and mind. No one can afford to get physically rusty, but when your body is already fighting disease, it needs to muster all the strength it can. This section will help you understand why and how you should address your physical needs, but always consult with your doctor first before embarking on any exercise routine.  

Nutrition

Whether you think you already eat healthy or not, now is the time to get serious about proper nutrition. Patients have the ability to contribute to their overall health - as well as optimize the production of new blood cells by their bone marrow - when they eliminate unhealthy or overly-rich food and drink and follow a diet recommended by their doctor. Food handling and preparation are just as important, so those tips are also included in this section.