Amer Zeidan, MBBS
Zeidan, Amer
Assistant Professor Of Medicine (hematology)
Yale University and Yale Cancer Center
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patient
Patient, Educator, and Volunteer
Person's Name:
Stephen King
A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.
“I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”
Early Diagnosis, Treatment and Emphasis on Self-Advocacy
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Jamie Lam - PNH Patient Jamie Lam Resumes Favorite Sport
Person's Name:
Jamie Lam
I realized something wasn’t right when I was out of breath from simply walking up a hill to get to class during my senior year in college. I had been an active fencer since high school, and it didn’t make sense that walking up a hill would give me so much trouble. I visited my doctor after graduation, and I was put in the hospital the next day. My nurse came in and told me, “We are paging the doctor who does
Bone Marrow Disease(s):
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A Rare Case of Aplastic Anemia Later in Life Won't Stop Me
Person's Name:
Al Meyer
I grew up in Louisiana - born in New Orleans and raised in Lafayette. I joined the Army, and went to Seattle and worked at Madigan General Hospital where I met my wife. I was then sent to Vietnam. After I returned, I worked for a bank in Seattle for 16 years, becoming a vice president and manager. I helped finance an auto auction as part of this job, and as a result, I fell in love with the car businesses. I was accepted for a Ford training program that lasted for two years at a Seattle Ford dealership.
Bone Marrow Disease(s):
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Thankful to Be Here and Alive
Person's Name:
Kendra Arvon
I was a very active 17-year-old when I got the news. It was October of 2005, the beginning of high school basketball season in my hometown of Beckley, West Virginia, when I became ill. I thought it was a really bad cold or even the flu, but I was used to being sick and fighting through it, so I didn’t think much about it. I started antibiotics while I continued going to school and playing basketball. I would start to feel better for a while, then BOOM, it would hit me like lightning again. I would take more antibiotics and continue my life as usual. I thought I was tough.
Bone Marrow Disease(s):
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Aplastic Anemia Patient “Just Focused on Beating It”
Person's Name:
Brittany Springer
In February of 2011 I was 22-years-old and attending Orange Coast College. One day I began to notice that I was bruising easily. My legs were covered in bruises by the time I went to my doctor. The doctor told me I was probably anemic and run down due to my work and school schedule. She ran a regular CBC blood test.
Bone Marrow Disease(s):
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Bridget Casey – PNH Survivor and Scholarship Recipient Uses Her Faith To Help Others
Person's Name:
Bridget Casey
"I discovered that I might not live to my 40th birthday."
Bone Marrow Disease(s):
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A spirit of adventure helps her live life to the fullest
Person's Name:
Robin Grapa
Bone Marrow Disease(s):
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Alani tells how he has become his own best advocate
Person's Name:
Alani Diaz
“I never even had a cavity before I was diagnosed with PNH, plenty of denial later, I now live my life with PNH in it and don’t let PNH run my life!”
I lead an ordinary life, a healthy life. My name is Alani and this is my story.
Bone Marrow Disease(s):
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Valeria Santini, MD
Santini, Valeria
Associate Professor
University of Florence
Valeria Santini is an Associate Professor of Hematology at the University of Florence Medical School in Florence Italy, where she received her degree in Medicine and Postgraduate diploma in hematology (cum laude). She worked as an EORTC fellow in experimental hematology from 1988 to 1991 at the Dr. den Hoed Kliniek, Erasmus University, Rotterdam. In 1999 she worked in the Department of Leukemia at MD Anderson Cancer Center, University of Texas, Houston.
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