Pediatric Nurse Finds her Way through Aplastic Anemia Treatment
Pediatric nurse to medical student to patient? This was Claire's life. Listen to her story here.
Podcast Episodes
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
MDS and Keeping Hope - Donna's Story
Donna Gilbride explains her journey through diagnosis and treatment with MDS, or Myelodysplastic Syndromes.
Listen or read the transcript below.
Long, Hard, Road to Diagnosis - Shaquilla's Story
Shaquilla Gordon explains her journey with the bone marrow failure condition called PNH, or Paroxysmal Nocturnal Hemoglobinuria. Listen or read the transcript below.
In Treatment for PNH: Shane's Story
Shane Pope talks about living with PNH, or Paroxysmal Nocturnal Hemglobinuria, in this recorded conversation with Leigh Clark. Listen or read the transcript below.
FDA Approval of PiaSky for Pediatric Patients with PNH, Featuring Satheesh Chonat, MD
Dr. Satheesh Chonat explains how pediatric patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria, may be treated with PiaSky in this recording. Listen now or read transcript below.
FDA Approval of PiaSky for Patients with PNH
Dr. Carlos DeCastro reviews how PiaSky can be used to treat patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria. Listen or read the transcript below.
Rory Shallis Explains New Therapy for Patients with Low-Risk MDS, Imetelstat
Dr. Rory Shallis explains the treatment, Imetestat, for patients with Low Risk MDS. Listen or read the transcript below.
Recent FDA Approval of Danicopan for Patients with PNH
Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria.
Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant
Damian was very active when routine blood work showed a problem. But Damian decided that going through treatment would be his mission, even if that meant two transplants. Listen here to his story.
Conquering PRCA: a conversation with Ron Duncan, Patient Survivor
Ron had a sudden alert when he learned he had one of the rarest of diseases. Listen to this conversation to learn how he managed diagnosis, treatment, and survivorship in this episode.
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