AAMDSIF is proud to announce the launch of our new website! You'll now find everything quickly and easily.
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
Brian's surprise MDS diagnosis leads to an unsettling strategy: watch and wait! Listen to him describe how he makes the most from the long-term waiting with low-risk MDS in this conversation with AAMDSIF.
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for bone marrow failure conditions.
Learn all about the risks, benefits, and side effects of the transplantation process.
Persistence, Advocacy, and a Clinical Trial: Theresa is now a Survivor!
Stephen King, patient and Board Member for AAMDSIF
Mary and Courtney White, spouse and daughter of patient, volunteers for AAMDSIF
Dr. Inga Hofmann is a University of Wisconsin Health pediatrician who specializes and is director of pediatric bone marrow transplant and hematology. She is devoted to rare childhood bone failure diseases and myelodysplastic syndromes in her focus and Dr. Hofmann was recently appointed medical director of the PACT program for advanced cell therapy initiative, which is being led by Dr. Jacques Galippo, MD in the Department of Medicine. Dr Hofmann's role with PACT will facilitate an important collaboration between the new GMP lab and pediatric bone marrow transplant program.
Bob MacFarlane, patient
Ruth and Neil Cuadra, patient and caregiver - also volunteers and Board Member with AAMDSIF.
H. Joachim Deeg, MD, is a board certified oncologist at Seattle Cancer Care Alliance, a University of Washington Professor of Medicine and Oncology and a researcher at Fred Hutchinson Cancer Research Center.
Special thanks to Abbvie and Taiho Oncology