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Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners, including Celgene.
Can sleep affect your treatment for bone marrow failure diseases? Dr. Asefa Mekonnen explains why sleep is important for patients as well as when to tell your doctor that you aren't sleeping well. Check this out!
Nancy has worked with hundreds of patients in her career, guiding patients through decision-making and treatment. Discover her best advice for bone marrow failure patients and caregivers in this podcast.
Patrice banned "stinkin' thinkin'" from her mind as she began treatment for aplastic anemia. Later, she'd continue that practice during her bone marrow transplant, so she began not just surviving, but thriving! Listen to her story here.
Listen to Duane's story, leading to his 2009 transplant, and continuing survivorship!
"Three hours after they drew my blood, my doctor called to tell me to go immediately to the emergency room!" Because Kirollos was a pharmacy student, he understood that having such low blood counts needed fast treatment, but he was still surprised. Discover how he progressed from diagnosis to transplant to survivorship quickly here.
"Never give up!" That's Brandi's advice to patients. Her diagnosis was months in coming, and then more time to find the best allogenic donor for her transplant---over 19 months in the hospital between diagnosis and successful transplant.
Bunny has PNH, but is living the survivor's life! Joe, her dear husband, has been her caregiver since the illness began. Listen to how they are sharing the journey here.
Senior Director of Health Professional Programs, Alice Houk, describes how your health care team can become your Partner toward health in this interview.
This is the first episode of our new podcast. Leigh Clark, Patient Educator, describes the bone marrow failure journey and how AAMDSIF can help!
