Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Zahra Pakbaz, MD
Discover the most recent treatments and therapies available for High-Risk MDS, or Myelodysplastic Syndromes, in this recorded session featuring Dr. Zahra Pakbaz.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Patient Ruth Cuadra describes her journey facing the challenges of aplastic anemia and MDS in this recording from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Brian Ball, MD
Learn about recent research and clinical advances for treating Low-Risk MDS, or Myelodysplastic Syndromes in this session from Dr. Brain Ball.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Presenter(s)
Ryotaro Nakamura, MD
Dr. Ryotaro Nakamura explains the entire process for bone marrow transplantation in this recorded session from the 2024 Los Angeles Patient and Family Conference. Learn the potential ways transplants can help patients with aplastic anemia or MDS.

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
In this webinar, Dr. Akriti Jain will explains the latest research presented the American Society of Hematology meeting on MDS and secondary AML. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
In this webinar, patients diagnosed with MDS discuss their patient journey and share their personal experiences.

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Topic(s)
Myelodysplastic Syndromes (MDS)
In this webinar, Jennie Vagher, certified genetic counselor, discusses hereditary or genetic predisposition to MDS. Jennie is an expert in rare cancer predisposition syndromes.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Kelly Bolton, MD, PhD
Eytan Stein, MD
In this webinar, Drs. Kelly Bolton and Eytan Stein discuss CCUS (clonal cytopenia of undetermined significance) and the connection to MDS.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
In this webinar, Jennifer Lotter explains medical terms most commonly used with a diagnosis of aplastic anemia, MDS, and PNH.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
Presenter(s)
Swapna Thota, MD
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lourdes Mendez, MD, PhD
Dr. Lourdes Mendez explains High-Risk MDS, or Myelodysplastic Syndromes, in detail for patients and families from the 2023 Patient and Family Conference in New Haven, CT. Learn about this condition and treatment options by watching now.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Lisa Barbarotta, MSN, APRN-BC, AOCNS
Lisa Barbarotta describes techniques to help manage low blood counts in this session.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Dr. Mina Xu discusses the steps involved in developing an accurate diagnosis for bone marrow failure diseases.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Catherine Lai, MD, MPH
Dr. Lai discusses the latest research presented at the 2023 EHA and ASCO meetings. This is an advanced educational presentation.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Learn about biosimilars, biosimilar medications, and their use for bone marrow failure disease treatments from Cate Lockhart, MS, PharmD, PhD.

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Topic(s)
Myelodysplastic Syndromes (MDS)
The panelists are individuals who are living with MDS, or Myelodysplastic Syndromes. Watch and learn from their own experiences. #MDS #bloodcancer

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
PAUL J. SHAMI, MD
Paul J Shami, MD of Huntsman Cancer Institute describes the types of therapies that may be used in treating MDS, or Myelodysplastic Syndromes that do not include a bone marrow transplant.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Ryotaro Nakamura, MD
Ryotaro Nakamura, MD, City Of Hope, explains the reasons why the specialist may recommend a bone marrow transplant for a patient with MDS. The recording includes questions from the audience.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Watch this informative patient panel from the 2023 Patient and Family Conference in Salt Lake City, Utah. This session was led by Jill Gahlsford, RN, of Huntsman Cancer Institute.
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