living with disease

Taking Charge of My Care and Advocacy Following a Cancer Diagnosis

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External Web Content
After a long battle with illness and seeking many specialists, I emphasize the need to self-advocate for ongoing care following my cancer diagnosis. Almost every cancer survivor will agree that we end up going to too many doctors. A friend of mine with both cancer and diabetes…

Status Update Support is Growing to Restore Funding to CDMRP and BMFRP Research Programs

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Status Update
Thanks to the efforts of our AAMDSIF bone marrow failure community and coalition partners, a bipartisan group of 105 U.S. House and 29 Senate members urged their leaders to restore funding to the Congressionally Directed Medical Research Programs ( CDMRP) including the Bone…

AAMDSIF Calls for Restoration of Bone Marrow Failure Research Funding

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Coalition Action
The Aplastic Anemia and MDS International Foundation joined 156 other members of the Defense Health Research Consortium (DHRC) in calling for Congress to restore funding in Fiscal Year 2025 for the Congressionally Directed Medical Research Program (CDMRP) which includes the Bone…

Pre-transplant inflammation and its associations with acute GvHD and mortality in pediatric allogeneic hematopoietic stem cell transplantation patients

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External Web Content
Abstract In this explorative study we aimed to identify inflammatory serum proteins measured before allogeneic hematopoietic stem cell transplantation (HSCT) that are associated with acute Graft-versus-Host Disease (aGvHD) and mortality in pediatric HSCT recipients. We measured…
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