living with disease

PNH Complications, from the 2025 Kansas City Patient and Family Conference

Topic(s)

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Presenter(s)

Srinivasa Reddy Sanikommu, MD

In this recording, Dr. Srinivasa Sanikommu discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. Recording includes the question-and-answer session.

Transplant and GVHD Session - 2025 Kansas City Patient and Family Conference

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Topic(s)

Bone Marrow Transplant

In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session.

Living Well with Bone Marrow Failure, from the 2025 Kansas City Patient and Family Conference

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Topic(s)

Living Well with Bone Marrow Failure

Managing Your Treatment

In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.

Urge your Members of Congress to Reverse the 57% Cut to the Congressionally Directed Medical Research Program

Original Publication Date

April 14, 2025

Article Source

Take Action

Federal budget negotiations are already under way. April 15 marks the 30-Day anniversary of the enactment of the 57% cut to CDMRP including the elimination of all funding to Bone Marrow Failure Research. Every medical research program at CDMRP directly impacts the health and…

2025 San Francisco - Bay Area Patient and Family Conference

Read more about 2025 San Francisco - Bay Area Patient and Family Conference

Recorded Sessions:

Nutrition for Aplastic Anemia, MDS, or PNH

Managing PNH Treatments

Advances in Aplastic Anemia

2025 Rockville Patient and Family Conference Session: PNH

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Topic(s)

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Presenter(s)

Bhumika Patel, MD

In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients.

2025 Patient and Family Conference Session: MDS and MPNs

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Topic(s)

Myelodysplastic Syndromes (MDS)

Presenter(s)

Catherine Lai, MD, MPH

In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources.