living with disease
PNH - A Patient Panel Discussion
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.
"Let's Roll:" What the Heroes of 9/11 can Teach us about Facing Blood Cancer
The morning of 9/11/01 was a doubly surreal experience for me. I was waiting for an appointment with my doctor at M. D. Anderson's Leukemia Center in Houston while chaos erupted in America. The waiting room was packed, as usual, with people at various stages of their own life-threatening events, and I was struck by the relative calm in this room compared to the state of disbelief and panic playing out on TVs throughout the country.
What is PNH?
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Caroline Piatek, MD
Dr. Caroline Piatek defined PNH, how PNH is diagnosed, the available treatment options, and side effect management. She also answered questions about PNH (Paroxysmal Nocturnal Hemoglobinuria.)
Caroline Piatek, MD
Institution
Keck Hospital of USC
Physician Status
accepting new patients
Primary Disease Area of Focus
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Caroline Piatek is an Associate Professor in the Jane Anne Nohl Division of Hematology at the Keck School of Medicine of USC. She is currently the fellowship director for the USC/LAC+USC Medical Hematology Fellowship Program. Dr. Piatek’s clinical focus is in non-malignant hematology. Her research interests include immune thrombocytopenia, warm autoimmune hemolytic anemia, cancer-associated thrombosis and paroxysmal nocturnal hemoglobinuria. After earning her medical degree from Creighton University School of Medicine, Dr. Piatek completed internal medicine residency and hematology/medical
2023 Salt Lake City Patient and Family Conference
Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates.
Presentation Materials:
Predisposition to Inherited Bone Marrow Failure Syndromes
Aplastic Anemia and Non-Transplant Therapies
Patient Panel: Addressing Patient Challenges and Barriers - Patient & Family Conference Utah 2023
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Watch this informative patient panel from the 2023 Patient and Family Conference in Salt Lake City, Utah. This session was led by Jill Gahlsford, RN, of Huntsman Cancer Institute.
Living with GVHD, or Graft Versus Host Disease, from the Patient and Family Conference Utah 2023
Topic(s)
Bone Marrow Transplant
Managing Your Treatment
Presenter(s)
Sagar S. Patel, MD
Sagar Patel, MD, Huntsman Cancer Institute, explains this post-transplant condition and its treatments. Watch to learn more about techniques used to prevent GVHD as well as short-term and long-term complications.
Ask the Pediatric Experts: Session from the Patient and Family Conference in Salt Lake City, UT 2023
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Suneet Agarwal, MD, PhD
Michael Pulsipher, MD
Suneet Agarwal, MD, PhD, from Boston Children's Hospital answered parents' questions in this session from the Patient and Family Conference in Salt Lake City, Utah. Find the answers to your most pressing question in this recording.