living with disease

Ninth International Bone Marrow Failure Disease Scientific Symposium

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
The biennial Symposium will bring together physicians treating these diseases; laboratory researchers studying genetics, genomics, and pathophysiology of bone marrow failure; and clinical investigators to discuss current areas of consensus and controversy, share recent research…

Caregivers: What to Expect When Your Loved One is Diagnosed

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
Presenter(s)
Swapna Thota, MD
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.

Medicare Made Simple- What is New in 2024?

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for…

MDS: A Patient Panel Discussion

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Topic(s)
Myelodysplastic Syndromes (MDS)
The panelists are individuals who are living with MDS, or Myelodysplastic Syndromes. Watch and learn from their own experiences. #MDS #bloodcancer

Extravascular Hemolysis and PNH

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
Dr. Taha Bat explains extravascular hemolysis, focusing on PNH (Paroxysmal Nocturnal Hemoglobinuria). This session is important for anyone affected by PNH.

Corporate Partners

AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care.

AAMDSIF Corporate Partners provide financial and in-kind support of programming through sponsorships and grants. AAMDSIF program content and speakers are created and managed by AAMDSIF staff in partnership with our Patient Advisory Council and Medical Advisory Board.

Advice for Caregivers

The National Family Caregivers Association's Director of Caregiver Wellness Programs, Jane Meier Hamilton, RN, MSN, has been a nurse for 40 years and family caregiver for 20 years. In a recent interview, she offered advice for family caregivers.

Is it true to say that many people don’t realize that they are caregivers?

"I Consider Myself Lucky:" New Mom Meghin Can Live her Life Now

On October 24th, 2022 I received the phone call that would change my life. Enjoying a ten minute bubble bath, I initially ignored the vibrating phone along the tub's porcelain edge. My husband had recently embarked on an overseas business trip, and for the first time I was parenting as a single parent. Exhausted, my throat sore, I had just put my seven month old son to bed and wanted nothing more than to snuggle into my cozy bed and sleep. I never did get to sleep. 

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