Horse ATG Saves Young Equestrian
Person's Name:
Liviya Anderson
Bone Marrow Disease(s):
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diagnosis
My Son's Aplastic Anemia
Person's Name:
Sue Gabriele
My son Jamie was a very sick child. He was in full-time daycare at the age of 12 months, so he caught every cold and infection imaginable. He’d be on one antibiotic and then need another due to a secondary infection.
Bone Marrow Disease(s):
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I’m working through aplastic anemia – my son helps me keep focused.
Person's Name:
John Vasquez
Bone Marrow Disease(s):
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Akiko Shimamura, MD
Shimamura, Akiko
Director, Bone Marrow Failure and Myelodysplastic Syndrome Program
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center
Shares her 11-year-old daughter's story
Person's Name:
Peggy Crosco
Brianna had always been a healthy young girl. We initially noticed some rather minor things with her but did not know at first how serious they were. She had low-grade fevers that went away during the day, but came back in the evening morning and there was her first-ever nosebleed. She missed school for a few days, so we saw her doctor. There is also a clotting disorder that run in our family – so I also wanted her to be checked for this because she had reached age where this should happen.
Bone Marrow Disease(s):
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San Diego Family Takes Action for Awareness
Person's Name:
Amy Ohton
My husband David’s journey with MDS began in April 2014, when it was discovered almost by chance while we were on vacation. David was bitten by a brown recluse spider and had a very severe reaction to it. He had to be hospitalized, which is when he got his first blood test in years. The doctor noted that his blood counts were low and, while he didn’t rule out that the spider bite might have affected the counts, there was a possibility of myelodysplasia.
Bone Marrow Disease(s):
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Bart Scott, MD
Scott, Bart
Assistant Member
Fred Hutchinson Cancer Research Center
Fighting PNH While Helping PNH Patients
Person's Name:
Joe Ellenberger
I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.
I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.
Bone Marrow Disease(s):
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Saved by Her Twin Sister
Person's Name:
Kathryn Bradley
I was your typical 14 year old teenager who always enjoyed spending time with friends and playing sports. On and off for about two years, my parents would take me to see different doctors to figure out why I had aches and pains, stomach issues and fatigue.
Bone Marrow Disease(s):
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Related Diseases
Bone marrow failure includes other diseases and conditions that are related to aplastic anemia, MDS and PNH. AAMDSIF extends its programs, services and support to patients and families suffering from these rare diseases as well.