South River Hope, Steps & A Cure: June 7, 2015
Notable Numbers
- 130+ Walkers and Runners
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Clinical Trials Report for December 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
Clinical Trials Report for November 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
2016 Health Insurance Enrollment Begins November 1st
Open enrollment for health insurance begins again on November 1st and millions of Americans have signed up to make sure they are in the loop about important coverage deadlines, as well as newly available prices and plans in 2016. As we move into the third year of the Affordable Care Act (ACA), AA&MDSIF wants to highlight a few of the issues that patients with rare diseases should be aware of:
“Mom, it’s too late. I’m dying.”
My husband Rick and I knew Jake was not feeling well. He kept denying it and saying he was fine. A bloody nose scared me, and then I remembered how my brother-in-law had them as a child and thought it was hereditary. Then his high school said he had another. He began to ask us if he looked pale. We said that he did. He also was coughing and seemed lethargic. We encouraged him to go to the doctor, but he said he was fine.
Clinical Trials Report for October 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
How to Find a Research Article
The websites shown in this article are all accessible at no charge to the public. You can use any of them to get a list of articles and, usually, abstracts (summaries) of articles for free. But access to full-text articles often requires a fee.
PubMed
BMT Meant 'It Could Finally Be Over '
At the last race of my high school cross country career, I stood on the starting line with one hundred other girls and repeated only one thought - “just finish”. I didn’t think about winning. I didn’t think about beating any records or trying to beat anyone, for that matter. I just wanted to finish. I wanted to look back and know that I did this one thing for me. I wanted to know that I did something that scared me, something that no one expected me to do, and something that I wasn’t even sure I could do. I wanted to power through this race and finish.
Telemedicine – How Will It Change Your Medical Experience?
Telemedicine, also known as telehealth is becoming a daily medical standard practice used by healthcare professionals throughout the world. Formally defined, telemedicine is the use of telecommunications technology, by medical practitioners, to remotely evaluate, diagnose and treat patients (GlobalMed). This is made possible by the use of a variety of applications and services that include using two-way video services, email, smart phones, wireless tools, and other forms of telecommunications technology.
What Services Can Be Provided By Telemedicine?
Clinical Trials Report for September 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.