PNH Symptoms
PNH can cause variety of symptoms. These can vary greatly from person to person. You may have many symptoms, or just one or two. And you may get a new symptom at any point in the course of your illness.
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Support
Because patients need help in different ways, we offer a variety of support services. From the patient/family HelpLine and support networks to live conferences, online classes and volunteer events, our aim is to positively impact as many lives as we can. Our community members contribute to that goal by sharing their own inspirational Stories of Hope, supporting each other's need to stay positive and motivated.
Education
Diseases like aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells
PNH Causes
PNH occurs because of a genetic change in bone marrow bone marrow: The soft, spongy tissue inside most bones.
Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH, or Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemog
Phil Scheinberg, MD
Institution
Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Phil Scheinberg is Chief of Clinical Hematology at the Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil. He received his medical degree in 1995 at the University of Santo Amaro in Sao Paulo, Brazil and completed his residency (1997-2001) at Mount Sinai Medical Center in Miami Beach, FL where he became Medical Chief Resident. Dr. Scheinberg held a Hematology/Oncology Fellowship (2001-2005) before becoming a staff clinician at the Hematology Branch of the National Heart, Lung, and Blood Institute (NHLBI) at the National Institutes of Health (NIH) in Bethesda, MD. During his
Policymakers Act on Rare Disease Community’s Behalf
When the federal government is handing out money, it’s all too common for rare diseases to be overlooked since, by definition, they affect far fewer people. But December was a good month for our community. The U.S.
Clinical Trials Report for January 2016
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.
South River Hope, Steps & A Cure: June 7, 2015
Notable Numbers
- 130+ Walkers and Runners
Clinical Trials Report for December 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.