Paroxysmal Nocturnal Hemoglobinuria (PNH)

Nikolai Podoltsev, MD, PhD

Institution
Smilow Cancer Hospital at Yale
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Podoltsev practice is focused on myeloid neoplasms including acute myelogenous leukemias (AML), myelodisplastic syndromes (MDS), myeloproliferative neoplasms (MPNs) like polycythemia vera (PV), essential thrombocythemia (ET), myelofibrosis (MF), chronic myelogenous leukemia (CML) among others. He is providing care for patients with bone marrow failure syndromes / aplastic anemia as well as acute lymphoblastic leukemia. Dr. Podoltsev also follows patients with clonal hematopoiesis of indeterminate potential (CHIP), systemic mastocytosis and hypereosinophilic syndrome.

Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19)

This content has been prepared in consultation with AAMDSIF Medical Advisory Board Chair Mikkael Sekeres MD, MS of Sylvester Comprehensive Cancer Center, University of Miami and Co-Chair Olatoyosi Odenike MD of the University of Chicago with additional review by Amy DeZern, MD, Johns Hopkins and Carlos De Castro, MD, Duke. ( November 2022)

“Everything is going to be okay:” Jocelyn’s Story of Aplastic Anemia, PNH, and Survivorship

Before diagnosis, Jocelyn’s life was normal, predictable. She was thriving her senior year in college, studying Public Relations. In 2008, she was working, volunteering, attending classes---all the normal activities for a 20-year-old. 

But one day that changed. Extreme fatigue set in, making it difficult to walk a single flight of stairs. At first, she dismissed the fatigue to her rigorous schedule. 

Barry Skikne, MD

Institution
Westwood Medical Pavilion and the Richard and Annette Bloch Cancer Care Pavilion
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Barry Skikne is certified by the American Board of Internal Medicine with a subcertification in hematology. He completed a fellowship at the University of Kansas Medical Center. He earned his medical degree from the University of Witwatersrand and completed his residency at Johannesburg Hospital.

Charles J. Parker, MD

Institution
University of Utah School of Medicine
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Charles J. Parker, M. D., is a Professor of Medicine in the Division of Hematology and Hematologic Malignancies, Department of Internal Medicine, at the University of Utah, the Huntsman Cancer Institute and the George E. Whalen VA Medical Center, Salt Lake City, UT. As a Hematologist, his clinical interests include paroxysmal nocturnal hemoglobinuria, hemochromatosis and porphyria.

Luca Malcovati, MD

Institution
IRCCS S. Matteo Hospital Foundation & University of Pavia
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Malcovati is an Associate Professor of Hematology at the University of Pavia Medical School and with special interest and expertise in myeloid neoplasms, in particular, myelodysplastic syndromes and myelodysplastic/myeloproliferative neoplasms. Dr. Malcovati's research group has made a significant contribution to understanding the molecular basis of myeloid neoplasms and to the integration of somatic mutations in the clinical management of patients.

Mojtaba Akhtari, MD

Institution
Loma Linda University Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Mojtaba Akhtari is a Hematologist/Oncologist with medical and hematology/oncology training and experience in the United Kingdom and United States of America. He is board certified in Internal Medicine, Hematology and Medical Oncology. Currently he is working at Loma Linda Cancer Center and University Hospital. He is the Chief of Adult Hematopietic Stem Cell Transplant. He was also a member of adult bone marrow transplantation team at UNMC in Omaha, NE, and USC in Los Angeles, CA. His interests include malignant hematological disorders, particularly acute and chronic leukemias as well as
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