Please make a donation to the Aplastic Anemia and MDS International Foundation this holiday season.
Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Aplastic Anemia and Transplant
Donna Gilbride explains her journey through diagnosis and treatment with MDS, or Myelodysplastic Syndromes.
Listen or read the transcript below.
Shaquilla Gordon explains her journey with the bone marrow failure condition called PNH, or Paroxysmal Nocturnal Hemoglobinuria. Listen or read the transcript below.
Webb was in university, playing soccer, when he started noticing a rash and breathlessness during a run. He’d never had either symptom, particularly since he was in such good shape, playing soccer since the age of three.
In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and AML. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.
Shane Pope talks about living with PNH, or Paroxysmal Nocturnal Hemglobinuria, in this recorded conversation with Leigh Clark. Listen or read the transcript below.
