Newsstand | Aplastic Anemia & MDS International Foundation

Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

Newsstand

Starting Chemotherapy, When You’re Ready

Originally Published: 10/17/2019
It’s better if you start cancer treatment when you can jump in wholeheartedly and without regrets. -by Mikkail Sekeres, MD in the New York Times    

When Mutant Cells Team Up, an Even Deadlier Blood Cancer Emerges [Video]

Originally Published: 10/14/2019
Sometimes the whole is greater than the sum of its parts. Researchers at Cold Spring Harbor Laboratory have discovered that two cell mutations, already harmful alone, enhance one another’s effects, contributing to the development of the deadly blood cancer acute myeloid leukemia (AML). CSHL Professor Adrian Krainer and his lab, along with Omar Abdel-Wahab at Memorial Sloan Kettering Cancer Center, detailed how mutations of the genes IDH2 and SRSF2 are unexpected partners-in-crime for causing AML.

September 2019 AAMDSIF Update Newsletter

Originally Published: 09/19/2019

New research allows scientists to observe abnormal cell mutation in myelodysplastic syndromes disease progression

Originally Published: 08/20/2019
Myelodysplastic syndromes (MDS) is a form of blood cancer that is caused by a range of failures of the bone marrow to produce normal functional blood cells. Through reprogramming patient blood cells, researchers recently found a new pathway to study the progression and appropriate treatment of this disease. 

August 2019 AAMDSIF Update Newsletter

Originally Published: 08/15/2019

Cancer-Related Post-traumatic Stress (PDQ®)–Patient Version

Originally Published: 07/09/2019
KEY POINTS Cancer-related post-traumatic stress (PTS) is a lot like post-traumatic stress disorder (PTSD) but not as severe. Cancer-related PTS can occur anytime during or after treatment.

Tips by a Myelodysplastic Syndromes Patient on How to Navigate the Internet When Researching Your Rare Disease

Originally Published: 06/24/2019
Jane Biehl Jane Biehl has worked as a professor, rehabilitation counselor, and a librarian. She holds three different degrees, and spreads her knowledge through freelance writing. She also has a myelodysplastic syndromes (MDS), a rare immune deficiency diagnosis, and is a cancer survivor. Currently, she writes for CURE. 

Make The Internet Your Friend, Not Your Foe!

Originally Published: 06/14/2019
I receive e-mails and questions from people all over the country because of my website and articles I write for CURE®. There are so many poignant questions and concerns: “What chemo are you on?” “What are the side effects?" “I am scared to death to start chemo after reading about the side effects from patients on the Internet.”     I just want to shout through the computer – "STOP DRIVING YOURSELF CRAZY!" I am the first person to Google any new conditions, chemo or treatment I am on. However, the key is knowing when to stop! When I was first diagnosed with myelodysplastic syndrome (MDS), I...