Newsstand | Aplastic Anemia & MDS International Foundation

Newsstand

Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

Against all odds: Unrelated stem cell transplants in coronavirus times

Originally Published: 03/27/2020
The COVID-19 crisis has consequences not only for those who have become infected and the doctors and nurses who care for them. The care of other patients is also threatened by the increasing stress that national health systems and societies as a whole are under. Also, cancer has no borders, and patients in need continue to need our help. Against all odds, we care for unrelated stem cell transplants in these difficult times. As chief medical officers of the National Marrow Donor Program (NMDP) and German-based DKMS, the two world’s largest volunteer bone marrow and blood stem cell donor...

Coronavirus 2019: What People With Cancer Need to Know

Originally Published: 03/25/2020
Coronavirus 2019: What People With Cancer Need to Know Merry Jennifer Markham, MD, FACP March 25, 2020 · Merry Jennifer Markham, MD, FACP This post is reviewed and updated every day. It was first published on March 3. Merry Jennifer Markham, MD, FACP, is the Interim Chief of the University of Florida (UF) Division of Hematology & Oncology, an Associate Professor in the UF College of Medicine, and the Associate Director for Medical Affairs at the UF Health Cancer Center. She specializes in the treatment of gynecologic cancers. Dr. Markham is the chair of ASCO's Cancer Communications...

Coronavirus: What People with Cancer Should Know

Originally Published: 03/23/2020
Coronavirus: What People with Cancer Should Know ON THIS PAGE What is coronavirus, or COVID-19? If I have cancer, am I at higher risk of getting or dying from COVID-19? If I have cancer, how can I protect myself? I receive cancer treatment at a medical facility. What should I do about getting treatment? I participate in a clinical trial at a medical facility. What should I do? What should I do if I have symptoms of an infection? (All content continues at the link)

Stuck Inside? Come Hang Out With The Mighty Community!

Originally Published: 03/20/2020
Join The Mighty’s staff and community for a series of events designed to put the SOCIAL in social distancing. We’ve got writing workshops, fun events for kids, interactive Facebook Lives, and more! Check out the schedule (con't)

Frequently Asked Questions: Coronavirus Disease 2019 (COVID-19) and Maintaining Mental Health

Originally Published: 03/16/2020
The outbreak of coronavirus disease 2019 (COVID-19) may be stressful for people and communities. Fear and anxiety about a disease can be overwhelming and cause strong emotions in adults and children. Information follows about how to cope with mental health and stress and anxiety during this time: (Links follow)

Coronavirus Update: FDA and FTC Warn Seven Companies Selling Fraudulent Products that Claim to Treat or Prevent COVID-19

Originally Published: 03/09/2020
The U.S. Food and Drug Administration (FDA) and the Federal Trade Commission (FTC) issued warning letters to seven companies for selling fraudulent COVID-19 products.  These products are unapproved drugs that pose significant risks to patient health and violate federal law.  The FDA and FTC are taking this action as part of their response in protecting Americans during the global COVID-19 outbreak. The warning letters are the first to be issued by the FDA for unapproved products intended to prevent or treat “Novel Coronavirus Disease 2019” (COVID-19). “The FDA considers the sale and...

Outline Images PDF Share Favorites Permissions More NEWS End-of-Life Care for Patients with Blood Cancers Proves Complicated

Originally Published: 03/05/2020
Hospice is the gold standard of care for patients near the end of life. But patients with blood cancers too often are unable to reap the benefits of that comforting option because of obstacles confronting those suffering from or treating hematologic malignancies. “Overwhelmingly, the literature has shown that patients with blood cancers are more likely to die in the hospital than in hospice,” said Oreofe Odejide, MD, MPH, Assistant Professor of Medicine at Harvard Medical School and hematologic oncologist at the Dana-Farber Cancer Institute. “So in that way they experience different care—a...

Expanded Choices Emerge for Myelofibrosis Following Ruxolitinib Therapy

Originally Published: 02/28/2020
Ruben Mesa, MD Newly approved and investigational agents are joining ruxolitinib (Jakafi) for the treatment of myelofibrosis (MF) and may provide options for patients who progress or become intolerant to frontline JAK inhibitors. At the 24th Annual International Congress on Hematologic Malignancies, hosted by Physicians’ Education Resource®, LLC, Ruben Mesa, MD, who is director of the UT San Antonio MD Anderson Cancer Center, presented available and emerging therapy options for patients who require additional MF therapy following ruxolitinib. (continued)

What's-New: Foundation Update Newsletter February 2020

Originally Published: 02/17/2020
To find inside: NEW Find a Specialist Page NEW Patient & Family Conference, Atlanta March For Marrow 11th Anniversaries in The Highlands, TX and Long Beach, CA NEW MDS Patient Guide NEW Home for Recorded Webinars NEW Patient Story Clinical Trial, Rare Disease Day 2020, and more!