Newsstand | Aplastic Anemia & MDS International Foundation

Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

Newsstand

10 Tips for Managing Cancer-Related Stress and Anxiety

Originally Published: 05/22/2019
A cancer diagnosis can be a life-changing event, bringing with it a great deal of uncertainty. Cancer treatment can affect the physical body in the forms of weight loss, weakness, or hair loss, and can also affect mental health and wellbeing. Many patients and caregivers deal with the mental and physical effects of stress and anxiety. Common feelings include worry, fear, hopelessness, or feeling overwhelmed or out of control. Physically, you may feel tense or short of breath, suffer from headaches or muscle aches, or experience changes in your sleep and eating habits. You can learn...

Tibsovo Approved to Treat Newly Diagnosed AML With IDH1 Mutation

Originally Published: 05/03/2019
“The phase 1 results for Tibsovo demonstrated that this oral, single agent therapy can induce durable responses in newly diagnosed AML patients with an IDH1 mutation,” said Gail J. Roboz, MD, Professor of Medicine, Director of the Leukemia Program and a member of the Sandra and Edward Meyer Cancer Center at Weill Cornell Medicine and NewYork-Presbyterian/Weill Cornell Medical Center.

April 2019 Foundation Update Newsletter

Originally Published: 04/26/2019
Celebrating 35 Years, Webinars on-Demand, Patient Guides, Conferences, and more!  

Myelodysplastic Syndromes Treatment (PDQ®) Patient Version

Originally Published: 03/28/2019
This PDQ cancer information summary has current information about the treatment of myelodysplastic syndromes. It is meant to inform and help patients, families, and caregivers. It does not give formal guidelines or recommendations for making decisions about health care. Editorial Boards write the PDQ cancer information summaries and keep them up to date. These Boards are made up of experts in cancer treatment and other specialties related to cancer. The summaries are reviewed regularly and changes are made when there is new information. The date on each summary ("Date Last Modified") is the...

Foundation Update Newsletter March 2019

Originally Published: 03/11/2019

Treatment Options Improve for Older Patients With AML

Originally Published: 03/03/2019
More options are available than ever before for treating older patients with acute myeloid leukemia (AML) and fresh hopes are resting on combinations of venetoclax (Venclexta) plus hypomethylating agents, said Richard M. Stone, MD, at the 23rd Annual International Congress on Hematologic Malignancies®.1

Foundation Update Newsletter February 2019

Originally Published: 02/12/2019

February 2019 Newsletter: Foundation Update

Originally Published: 02/08/2019
Articles include: AAMDSIF Launches New and Improved Website for You! We Want to Hear from You: Patient Survey AAMDSIF Patient & Family Conference in Albuquerque NM Facts for Life 2019 Webinars Begin! and more! bone marrow failure disease, MDS, AML, aplastic anemia, CML, CMML, PRCA Myelodysplasia

Foundation Update Newsletter January 2019

Originally Published: 01/11/2019

Coping with Caregiver PTSD

Originally Published: 01/10/2019
Coming down from taking care of someone with cancer is like an addict going cold turkey. Every day I took care of Dan, we followed the same unbearable routine; the last weeks were especially traumatic for me. It's been three years since his death, and I think I am slowly emerging from PTSD. It has been difficult to assimilate back into society. I feel that only a few select people understand what I experienced as a caregiver not only for my husband of 25 years, but also for our son who has autism.