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Patient Education Council


What is the Patient Education Council?

The AAMDSIF Patient Education Council (PEC) was created in 2008. Its purpose is to serve as a resource to the AAMDSIF staff in the development and review of patient education materials, programs and services. Members of the PEC include doctors, nurses, patient educators, patients and caregivers, all of whom have an interest in supporting the needs of people living with aplastic anemia, MDS, PNH or another bone marrow failure disease. Review by the PEC provides patients and their families with the full confidence that they are receiving the most accurate, reliable and up-to-date information from the Foundation.

Patient Education Council members serve for a three year, renewable term. The current triennial appointments run from January 1, 2021 - December 31, 2023.  For more information about the Patient Education Council, please contact Leigh Clark, Patient Educator at or (301) 279-7202.


Chair Isabel Schuermeyer, MD

Taylor Buss, MSW

Nancy Clark

Ellen Coneybear

Paige Cranwell

Robert Delfeld

Ron Duncan

Inga Hoffman Zhang, MD, PhD

Hemant Murthy, MD

Joanna Myers Casale, RD, CSO

Ryotaro Nakamura, MD

Sandrine Niyongerre, MD

Debra O'Neal 

Joan Powell

Olga Rios, R.N.

Mario Rivera

Lydia Siders

Saira Sufi





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