What is the Patient Education Council?
The AAMDSIF Patient Education Council (PEC) was created in 2008. Its purpose is to serve as a resource to the AAMDSIF staff in the development and review of patient education materials, programs and services. Members of the PEC include doctors, nurses, patient educators, patients and caregivers, all of whom have an interest in supporting the needs of people living with aplastic anemia, MDS, PNH or another bone marrow failure disease. Review by the PEC provides patients and their families with the full confidence that they are receiving the most accurate, reliable and up-to-date information from the Foundation.
| Chairman | Danielle Townsley, MD, MSc |
| Members |
Karen Bosse Joanna Casale, RD, CSO Tom Clark Kenneth Cooke, MD Cory Cutler, MD Amy DeZern, MD Courtney DiNardo, MD Ron Duncan Ellen Conybear Norma Good Chris Hourigan, MD Catherine MacLean Melanie Marquez Sarah Nesheim Eric Padrone, MD Judy Paulette Olga (Nunez) Rios RN, BSN Isabel Schuermeyer, MD Raoul Tibes, MD, PHD Barbara Weinstein, RN, BSN |