Connecting with other patients and families can be a powerful and uplifting experience. Our networks let you learn from others, share your journey, get and give support and make new friends. You have the option of connecting on a one-to-one basis or with a group. You also choose the way you prefer to interact - by phone, in person or online.
Speak with a Peer Support Network Volunteer
Talk to a volunteer now: Call (800) 747-2820, select option 2, or email help@aamds.org, and we will match you with a Peer Support Network volunteer who can best meet your needs.
Become a Peer Support Network volunteer:
Peer Support Network volunteers, including patients, caregivers and family members, willing to listen and offer comfort and support. They share personal experiences, coping strategies, problem solving skills and informational resources. The support sessions take place over the phone and/or email.
Volunteers receive special training provided by AAMDSIF. They are also required to sign an agreement stating that they will keep all caller information private and confidential.
If you are interested in volunteering, please email us at help@aamds.org.
More About the Peer Support Network
Bone marrow failure Bone marrow failure: A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be… diseases are rare, so it is often difficult to meet others who are dealing with issues similar to your own. But you are not alone! We can help by putting you in touch with other patients and families also battling these diseases.
The Peer Support Network consists of a national network of volunteers, including patients, caregivers and family members, willing to listen and offer comfort and support. In addition, volunteers may share personal experiences, coping strategies, problem solving skills and informational resources. These support sessions take place over the phone.
Volunteers receive special training provided by AAMDSIF. They are also required to sign an agreement stating that they will keep all caller information private and confidential.
Our volunteers know the importance of networking with other patients, spouses, family members and loved ones. Speaking with a Peer Support Network volunteer is a great way to obtain information and receive emotional support.