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The is a pre-recorded session with the original PNH Registry Launch video and audience Q & A.
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This symposium provides updates on the most recent advances in the
pathophysiology
pathophysiology:
Functional changes in the bodies that are associated with or result from disease or injury.
, diagnosis and clinical management of
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of…
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The patient's life changes with diagnosis of any
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be……
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Mikkael Sekeres, MD, MS, explains Low-Risk MDS, or
Myelodysplastic Syndromes
Myelodysplastic Syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low blood…
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Dr. Damian Laber anticipates all your questions about PNH, or
Paroxysmal Nocturnal Hemoglobinuria
Paroxysmal Nocturnal Hemoglobinuria:
(par-uk-SIZ-muhl nok-TURN-uhl hee-muh-gloe-buh-NYOOR-ee-uh) A rare and serious blood disease that causes red blood cells to break apart. Paroxysmal means sudden and irregular. Nocturnal means at night. Hemoglobinuria means hemoglobin in the urine.…
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Bone marrow
Bone marrow:
The soft, spongy tissue inside most bones. Blood cells are formed in the bone marrow.
transplantation is rigorous, so understanding the challenges from the process is essential. Learn from Dr. Antonio Jimenez Jimenez all about what patients can expect when this treatment is selected.
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Learn about living with High-Risk MDS,
Myelodysplastic Syndromes
Myelodysplastic Syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low blood cell count for…
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What does it mean to be diagnosed with
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
? Which…
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The biennial Symposium will bring together physicians treating these diseases; laboratory researchers studying genetics, genomics, and
pathophysiology
pathophysiology:
Functional changes in the bodies that are associated with or result from disease or injury.
of
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy…
Webinar last updated
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This complimentary CME satellite symposium provided an in-depth and up-to-date review of research related to the biology, prognosis, natural history, and therapeutic management of patients with AA, PNH, MDS, AML, MPN, and related myeloid malignancies. The overall goal of the program is to bring together leaders in disease research and clinical practice to explore solutions to improving the care…
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Bone marrow failure
Bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
includes other diseases and conditions that are…
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Dr. Grunwald is board certified in internal medicine, hematology and medical oncology. He specializes in hematology-oncology (cancer and blood disorders).
He has clinical interests in acute and chronic leukemias, including myelodysplastic syndrome and myeloproliferative neoplasms, transplantation and cellular therapy.
He is chief of the Leukemia Division at Atrium Health’s Levine Cancer…
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Alejandro Marinos Velarde, M.D., is an Assistant Professor in the Department of Internal Medicine at UT Southwestern Medical Center. He specializes in
allogeneic stem cell transplant
allogeneic stem cell transplant:
A procedure where bone marrow stem cells are taken from a genetically matched donor (a brother, sister, or unrelated donor) and given to the patient through an…
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Dr. Pankit Vachhani is an Assistant Professor of Medicine at the University of Alabama at Birmingham and Associate Scientist of Experimental Therapeutics. He graduated from Weill Cornell Medical College in Qatar in 2012 and on to complete his internal medicine residency at Virginia Commonwealth University, followed by a fellowship in hematology/oncology at Roswell Park Comprehensive Cancer Center…
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