Webinars | Aplastic Anemia & MDS International Foundation

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Watch Recorded Patient Webinars

Presenter: Bhavisha Patel, MD
Topic(s): Aplastic Anemia

Dr Patel of the National Institutes of Health Bhavisha Patel, MD, is a Staff Clinician at the National Institutes of Health, working under Neal Young, MD on the Hematopoiesis and Bone Marrow Failure team.

Presenter: Shannon McCurdy, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Dr. McCurdy discusses treating MDS (myelodysplastic syndromes) with combination therapies including the latest treatment options available and promising clinical trials and research.

Presenter: Sarah Bannon, MS, CGC
Topic(s): Myelodysplastic Syndromes (MDS)

Sarah Bannon is a Senior Genetic Counselor in the Department of Clinical Cancer Genetics at the UT MD Anderson Cancer Center. Her clinical responsibilities include providing risk assessment and genetic counseling services to individuals at risk for an inherited predisposition to hematologic malignancies (leukemia). She is the Genetic Counselor for the Hereditary Hematologic Malignancies Clinic (HHMC).

In this webinar, Ms. Bannon discusses hereditary or genetic predisposition to having MDS.

Presenter: Mary K. Hughes, MS, RN, CNS, CT
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Mary Hughes, MS, RN, CNS, CT shares coping strategies that patients can use to lessen the fear of disease recurrence as they adjust to life after diagnosis and treatment.

Presenter: Olatoyosi Odenike, MD
Topic(s): COVID-19

Olatoyosi Sobulo Odenike, MD, is Professor of Medicine in the Section of Hematology/Oncology and Director of the Leukemia Program at the University of Chicago as well as Co-Chair of the AAMDSIF Medical Advisory Board. Dr. Odenike is an expert in the care of adults with leukemia, chronic myeloproliferative diseases, and myelodysplastic syndromes. An active researcher, Dr. Odenike is involved in the development of novel therapeutic agents for the treatment of acute and chronic leukemias and chronic myeloproliferative diseases. The ultimate goal of her research is to improve treatment options for patients with these diseases. Dr. Odenike is the principal investigator on a number of clinical trials investigating molecularly targeted agents in this patient population. These clinical trials also integrate laboratory studies to evaluate the effect that these agents have on cancer cells.

Presenter: Krisstina Gowin, DO
Topic(s): Living Well with Bone Marrow Failure

Dr. Gowin discusses the critical aspects of living well with the overlapping diagnosis of MDS and MPNs. Her presentation includes a scientific assessment of interventions including nutrition, supplements, exercise and meditation.

Presenter: Aziz Nazha, MD
Topic(s): Myelodysplastic Syndromes (MDS)
Presenter: Timothy Olson, MD, PhD
Topic(s): Aplastic Anemia

Due to internet connectivity issues, the audio for this webinar will be rerecorded as soon as the speaker is available. In the interim, please accept our apologies for the quality of the sound. We are attached a PDF of the presentation for your review although we note that the video quality was acceptable. 

Timothy S. Olson, MD, PhD, is an Attending Physician with Children's Hospital of Philadelphia where he serves as the Medical Director of the Blood and Bone Marrow Transplant Program and as Director of Research for the Comprehensive Bone Marrow Failure Center.  Dr. Olson is also an Assistant Professor of Pediatrics at the Perelman School of Medicine at The University of Pennsylvania.  Dr. Olson focuses on pediatric hematopoietic stem cell transplantation (HSCT), with a specific emphasis on HSCT for patients with inherited and acquired bone marrow failure.

Presenter: Michael Keng, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Michael Keng, M.D. is an Assistant Professor and holds a clinical faculty appointment in Medicine in the Division of Hematology/Oncology at UVA Cancer Center. He practices at the Emily Couric Clinical Cancer Center in Charlottesville and serves as an inpatient hematologist at UVA Hospital. His clinical areas of interest are: myelodysplastic syndromes, myeloproliferative disorders, acute myeloid leukemia, chronic myeloid leukemia, acute lymphoid leukemia, and aplastic anemia. Dr. Keng provides a overview of the current treatment strategies for high risk MDS (myelodysplastic syndromes) patients and answers patient questions at the end of the presentation. Please note that this presentation is runs longer than most AAMDSIF webinars (1 hour, 27 minutes).

Presenter: Ilene Weitz, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Ilene Weitz, MD, is an assistant professor of clinical medicine at the Keck School of Medicine at the University of Southern California (USC). Her practice sites include, LAC+USC Medical Center, Keck Hospital of USC and USC Norris Cancer Hospital. Dr. Weitz is board certified in Internal Medicine and Hematology.  This webinar focuses on the latest in research presented at the 2019 American Society of Hematology (ASH) Annual Meeting held at the end of 2019. Dr. Weitz has selected a number of abstracts (research summaries) and provides a high level assessment of new and ongoing research into treating aplastic anemia and/or PNH. Participants were able to submit questions during the presentation and Dr. Weitz' responses are at the end of the webinar recording. 

Presenter: Mikkael Sekeres, MD, MS
Topic(s): COVID-19

Mikkael Sekeres, MD, MS discusses issues related to the impact of COVID-19 on the care of bone marrow failure patients including the importance of patients remaining at home even as more areas reduce restrictions, adapting to telemedicine, and resuming treatments that may have been delayed.

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Mesa discusses the overlap between MDS (myelodysplastic sydromes) and MPNs (myeloproliferative neoplasms), including diagnosis and treatment options including the latest in clinical trials. He also provides an update on the impact of COVID-19 on patients with MDS/MPNs overlap syndrome.

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

This webinar is an excerpt from a longer webinar entitled "Understanding the Overlap between MDS and MPNs" and has been edited accordingly. Dr. Mesa gives an overview of the specific concerns that patients with the overlapping conditions of MDS and MPNs have related to the coronavirus (COVID-19) pandemic. 

Presenter: Rami Komrokji, MD
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, of Moffitt Cancer Center in Tampa, Florida, addresses the concerns of low-risk MDS patients and their caregivers and reviews the precautions they should be taking to protect their health during the COVID-19 pandemic. The webinar recording features patient-submitted questions.

Presenter: Shyamala Navada, MD
Topic(s): Aplastic Anemia

Shyamala Navada, MD, MSCR, Mount Sinai Hospital, New York, provides an overview of the diagnosis and treatment of aplastic anemia and an update on new treatment options that are in the clinical trial and study phase. Dr. Navada also answers patient-submitted questions.

Presenter: Daniel Pollyea, MD, MS
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

Daniel Pollyea, MD, MS, University of Colorado Health, gives a comprehensive overview of what happens when a higher risk MDS patient transitions to AML including the diagnositic criteria, treatment options and outcomes assessments. Dr. Pollyea also reviews some of the most promising treatment options that are in clinical trial and/or new to the treatment space. He also discusses the increasing success rates for older patients who go to transplant as a curative treatment for High Risk MDS and AML. Dr. Pollyea answers a number of patient-submitted questions as well. 

Presenter: Jamile M. Shammo, MD, FASCP, FACP
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Jamile Shammo, MD, FASCP, FACP, Rush University, Chicago, provides an update on the latest in diagnosing and treating PNH including a discussion about Soliris and Ultomiris as well as several new treatments that are in clinical trials and are showing promise for patients with this rare disease. Dr. Shammo also answered a number of patient-submitted questions. 

Presenter: Hemant Murthy, MD
Topic(s): Bone Marrow Transplant

Hemant Murthy, MD, Mayo Clinic Jacksonville, Florida, provides a comprehensive overview of the risks and benefits of bone marrow transplant for patients with bone marrow failure disease including aplastic anemia, PNH, MDS and AML. This sessions includes a review of the generalized criteria for eligibility, the potential complications of transplant and long-term outcomes based on ongoing studies. Dr. Murthy also offers hopeful news for older patients who may have thought they were not eligible for transplant but with new treatment protocols may be able to at least consider this option. Dr. Murthy answered a number of patient-submitted questions at the end of the presentation. 

Presenter: Twyla Jackson, RDN, LD, CNSC
Topic(s): Living Well with Bone Marrow Failure

Twyla Jackson, RDN, LDN, CNSC, Northside Cancer Center, Atlanta, provides an overview of the dietary and nutritional concerns facing patients, families and caregivers dealing with bone marrow failure disease. Ms. Jackson provides evidence-based, scientifically accurate guidance including specific concerns related to potential interactions between certain treatment medications and specific foods. She also provides important information on the use of supplements and a healthy, active lifestyle. Ms. Jackson works closely with hematologists and oncologists in her role at Northside Cancer Center in Atlanta and this presentation includes specific questions from patients at the end. 

Presenter: Veronica Dioverti, MD
Topic(s): COVID-19

Veronica Dioverti Prono, MD, Johns Hopkins School of Medicine , Baltimore, provides an update on the COVID-19 (novel coronavirus) pandemic as it relates to patients, families and caregivers dealing with bone marrow failure disease. Dr. Prono gives practical advise on how to avoid exposure to the virus and answers questions from a live audience. 

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Presenter: Bhavisha Patel, MD
Topic(s): Aplastic Anemia

Dr Patel of the National Institutes of Health Bhavisha Patel, MD, is a Staff Clinician at the National Institutes of Health, working under Neal Young, MD on the Hematopoiesis and Bone Marrow Failure team.

Presenter: Timothy Olson, MD, PhD
Topic(s): Aplastic Anemia

Due to internet connectivity issues, the audio for this webinar will be rerecorded as soon as the speaker is available. In the interim, please accept our apologies for the quality of the sound. We are attached a PDF of the presentation for your review although we note that the video quality was acceptable. 

Timothy S. Olson, MD, PhD, is an Attending Physician with Children's Hospital of Philadelphia where he serves as the Medical Director of the Blood and Bone Marrow Transplant Program and as Director of Research for the Comprehensive Bone Marrow Failure Center.  Dr. Olson is also an Assistant Professor of Pediatrics at the Perelman School of Medicine at The University of Pennsylvania.  Dr. Olson focuses on pediatric hematopoietic stem cell transplantation (HSCT), with a specific emphasis on HSCT for patients with inherited and acquired bone marrow failure.

Presenter: Ilene Weitz, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Ilene Weitz, MD, is an assistant professor of clinical medicine at the Keck School of Medicine at the University of Southern California (USC). Her practice sites include, LAC+USC Medical Center, Keck Hospital of USC and USC Norris Cancer Hospital. Dr. Weitz is board certified in Internal Medicine and Hematology.  This webinar focuses on the latest in research presented at the 2019 American Society of Hematology (ASH) Annual Meeting held at the end of 2019. Dr. Weitz has selected a number of abstracts (research summaries) and provides a high level assessment of new and ongoing research into treating aplastic anemia and/or PNH. Participants were able to submit questions during the presentation and Dr. Weitz' responses are at the end of the webinar recording. 

Presenter: Shyamala Navada, MD
Topic(s): Aplastic Anemia

Shyamala Navada, MD, MSCR, Mount Sinai Hospital, New York, provides an overview of the diagnosis and treatment of aplastic anemia and an update on new treatment options that are in the clinical trial and study phase. Dr. Navada also answers patient-submitted questions.

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Phil Scheinberg, MD
Topic(s): Aplastic Anemia

During this webinar, Dr. Phillip Scheinberg from Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil discusses the history of Aplastic Anemia - past, current and future thinking of the disease and treatment options.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Kasiani Myers, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

Presenter: Shyamala Navada, MD
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment. 

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Amy E. DeZern, MD, MHS
Topic(s): Aplastic Anemia

Dr DeZern provides a thorough review of the three major classificiations of aplastic anemia including diagnosis, treatment and prognosis. 

Presenter: Cecelia Arana Li, MD
Topic(s): Aplastic Anemia

Dr Arana Yi provides a thorough overview of aplastic anemia including a discussion of the diagnosis and treatment options currently available. 

Presenter: David Margolis, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

This webinar discusses the most recent findings in aplastic anemia and PNH from the American Society of Hematology 2017.  

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Presenter: Shannon McCurdy, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Dr. McCurdy discusses treating MDS (myelodysplastic syndromes) with combination therapies including the latest treatment options available and promising clinical trials and research.

Presenter: Sarah Bannon, MS, CGC
Topic(s): Myelodysplastic Syndromes (MDS)

Sarah Bannon is a Senior Genetic Counselor in the Department of Clinical Cancer Genetics at the UT MD Anderson Cancer Center. Her clinical responsibilities include providing risk assessment and genetic counseling services to individuals at risk for an inherited predisposition to hematologic malignancies (leukemia). She is the Genetic Counselor for the Hereditary Hematologic Malignancies Clinic (HHMC).

In this webinar, Ms. Bannon discusses hereditary or genetic predisposition to having MDS.

Presenter: Aziz Nazha, MD
Topic(s): Myelodysplastic Syndromes (MDS)
Presenter: Michael Keng, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Michael Keng, M.D. is an Assistant Professor and holds a clinical faculty appointment in Medicine in the Division of Hematology/Oncology at UVA Cancer Center. He practices at the Emily Couric Clinical Cancer Center in Charlottesville and serves as an inpatient hematologist at UVA Hospital. His clinical areas of interest are: myelodysplastic syndromes, myeloproliferative disorders, acute myeloid leukemia, chronic myeloid leukemia, acute lymphoid leukemia, and aplastic anemia. Dr. Keng provides a overview of the current treatment strategies for high risk MDS (myelodysplastic syndromes) patients and answers patient questions at the end of the presentation. Please note that this presentation is runs longer than most AAMDSIF webinars (1 hour, 27 minutes).

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

This webinar is an excerpt from a longer webinar entitled "Understanding the Overlap between MDS and MPNs" and has been edited accordingly. Dr. Mesa gives an overview of the specific concerns that patients with the overlapping conditions of MDS and MPNs have related to the coronavirus (COVID-19) pandemic. 

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Mesa discusses the overlap between MDS (myelodysplastic sydromes) and MPNs (myeloproliferative neoplasms), including diagnosis and treatment options including the latest in clinical trials. He also provides an update on the impact of COVID-19 on patients with MDS/MPNs overlap syndrome.

Presenter: Rami Komrokji, MD
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, of Moffitt Cancer Center in Tampa, Florida, addresses the concerns of low-risk MDS patients and their caregivers and reviews the precautions they should be taking to protect their health during the COVID-19 pandemic. The webinar recording features patient-submitted questions.

Presenter: Rami Komrokji, MD
Topic(s): Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, Moffitt Cancer Center, Florida, provides a comprehensive overview of lower risk MDS from diagnosis to treatment. Dr. Komrokji focuses on how hematologists and oncologists use different tools to assess the risk for patients when diagnosed with MDS including an overview of IPSS-R. He also explains how this assessment tool is only useful prior to treatment and that after interventions, other assessment tools are used by healthcare professionals to provide guidance and support to patients, families and caregivers. Dr. Komrokhi further discusses the treatment landscape including the newly announced luspatercept and several prospective treatments in the pipeline/clinical trial phase. 

Presenter: Daniel Pollyea, MD, MS
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

Daniel Pollyea, MD, MS, University of Colorado Health, gives a comprehensive overview of what happens when a higher risk MDS patient transitions to AML including the diagnositic criteria, treatment options and outcomes assessments. Dr. Pollyea also reviews some of the most promising treatment options that are in clinical trial and/or new to the treatment space. He also discusses the increasing success rates for older patients who go to transplant as a curative treatment for High Risk MDS and AML. Dr. Pollyea answers a number of patient-submitted questions as well. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amer Zeidan, M.D.
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Amer Zeidan from Yale Cancer Center discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2019 meeting in Orlando, Florida.

Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML.

Presenter: Gail J. Roboz, M.D.
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Catherine Lai, MD, MPH
Topic(s): Myelodysplastic Syndromes (MDS)

Dr Catherine Lai, Medstar Georgetown University Hospital Lombardi Comprehensive Cancer Center, discusses the challenges associated with treating MDS in older adults and what treatment options are available. 

Presenter: Gail J. Roboz, M.D.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Gail Roboz from Weill Cornell, discusses the advances in MDS and AML research that was reported at the annual conferences of two major hematology/oncology organizations this summer – the American Society of Clinical Oncology (ASCO) and the European Hematology Association (EHA).

Presenter: Pamela Becker, MD, PhD
Topic(s): Myelodysplastic Syndromes (MDS)

During this webinar, Dr. Pamela Becker from Seattle Cancer Care Alliance and University of Washington School of Medicine discusses the history of MDS - past, current and future thinking of the disease and treatment options.

Presenter: Marlise Luskin, MD, MSCE
Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Marlise Luskin from Dana Farber Cancer Institute defines high-risk MDS versus low-risk MDS, impact for patients and what treatment options are available.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Amer Zeidan, M.D.
Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Amer Zeidan from Yale Cancer Center explains the different mutations found in MDS and answers the question -“Should patients with MDS ask about their cancer mutations?” He discusses how mutations impact prognosis and affect treatment decisions

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Presenter: Ilene Weitz, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Ilene Weitz, MD, is an assistant professor of clinical medicine at the Keck School of Medicine at the University of Southern California (USC). Her practice sites include, LAC+USC Medical Center, Keck Hospital of USC and USC Norris Cancer Hospital. Dr. Weitz is board certified in Internal Medicine and Hematology.  This webinar focuses on the latest in research presented at the 2019 American Society of Hematology (ASH) Annual Meeting held at the end of 2019. Dr. Weitz has selected a number of abstracts (research summaries) and provides a high level assessment of new and ongoing research into treating aplastic anemia and/or PNH. Participants were able to submit questions during the presentation and Dr. Weitz' responses are at the end of the webinar recording. 

Presenter: Jamile M. Shammo, MD, FASCP, FACP
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Jamile Shammo, MD, FASCP, FACP, Rush University, Chicago, provides an update on the latest in diagnosing and treating PNH including a discussion about Soliris and Ultomiris as well as several new treatments that are in clinical trials and are showing promise for patients with this rare disease. Dr. Shammo also answered a number of patient-submitted questions. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Shyamala Navada, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Shyamala Navada from Tisch Cancer Institute discussesthe history of PNH - past, current and future thinking of the disease and treatment options. 

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Thomas G. DeLoughery, MD, MACP, FAWM
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Thomas DeLoughery from Oregon Health Sciences University (OHSU) explains what is intravascular and extravascular hemolysis, symptoms, treatment and impact for patients.

Presenter: Jamile M. Shammo, MD, FASCP, FACP
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.

Presenter: Kasiani Myers, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Elizabeth Griffiths, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

A look to the future of treatment for patients with PNH (paroxysmal nocturnal hemoglobinuria). 

Presenter:
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

This webinar discusses issues related to PNH. 

Presenter: Catherine Broome, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Dr Catherine Broome provides a comprehensive overview of PNH for newly diagnosed patients and their families. This is a recorded webinar so you will not be able to ask questions. If you do have questions, please send an email to help@aamds.org or use the Chat option on the bottom right of your screen. 

Presenter: David Margolis, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

This webinar discusses the most recent findings in aplastic anemia and PNH from the American Society of Hematology 2017.  

Presenter: Leslie Ellis, BS, MD
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Learn about PNH, or Paroxysmal Nocturnal Hemoglobinuria. Dr. Leslie Ellis presents from normal bone marrow and blood to the PNH issues and diagnosis. Participants asked questions. 

 

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Presenter: Olatoyosi Odenike, MD
Topic(s): COVID-19

Olatoyosi Sobulo Odenike, MD, is Professor of Medicine in the Section of Hematology/Oncology and Director of the Leukemia Program at the University of Chicago as well as Co-Chair of the AAMDSIF Medical Advisory Board. Dr. Odenike is an expert in the care of adults with leukemia, chronic myeloproliferative diseases, and myelodysplastic syndromes. An active researcher, Dr. Odenike is involved in the development of novel therapeutic agents for the treatment of acute and chronic leukemias and chronic myeloproliferative diseases. The ultimate goal of her research is to improve treatment options for patients with these diseases. Dr. Odenike is the principal investigator on a number of clinical trials investigating molecularly targeted agents in this patient population. These clinical trials also integrate laboratory studies to evaluate the effect that these agents have on cancer cells.

Presenter: Mikkael Sekeres, MD, MS
Topic(s): COVID-19

Mikkael Sekeres, MD, MS discusses issues related to the impact of COVID-19 on the care of bone marrow failure patients including the importance of patients remaining at home even as more areas reduce restrictions, adapting to telemedicine, and resuming treatments that may have been delayed.

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

This webinar is an excerpt from a longer webinar entitled "Understanding the Overlap between MDS and MPNs" and has been edited accordingly. Dr. Mesa gives an overview of the specific concerns that patients with the overlapping conditions of MDS and MPNs have related to the coronavirus (COVID-19) pandemic. 

Presenter: Ruben Mesa, MD, FACP
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Mesa discusses the overlap between MDS (myelodysplastic sydromes) and MPNs (myeloproliferative neoplasms), including diagnosis and treatment options including the latest in clinical trials. He also provides an update on the impact of COVID-19 on patients with MDS/MPNs overlap syndrome.

Presenter: Rami Komrokji, MD
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS)

Rami Komrokji, MD, of Moffitt Cancer Center in Tampa, Florida, addresses the concerns of low-risk MDS patients and their caregivers and reviews the precautions they should be taking to protect their health during the COVID-19 pandemic. The webinar recording features patient-submitted questions.

Presenter: Veronica Dioverti, MD
Topic(s): COVID-19

Veronica Dioverti Prono, MD, Johns Hopkins School of Medicine , Baltimore, provides an update on the COVID-19 (novel coronavirus) pandemic as it relates to patients, families and caregivers dealing with bone marrow failure disease. Dr. Prono gives practical advise on how to avoid exposure to the virus and answers questions from a live audience. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Gail J. Roboz, M.D.
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: H. Joachim Deeg, MD
Topic(s): Bone Marrow Transplant, COVID-19

In this webinar, Dr. Deeg addresses the pre and post transplant concerns of bone marrow failure patients and their caregivers and reviews the precautions they should be taking to protect their health, particularly during this pandemic.

Our apologies, but this webinar had some technological challenges during the presentation and the sound quality is not ideal. We will also provide a transcript of the session which should provide clarity on the responses from Dr. Deeg to the questions submitted during the Q & A portion of the webinar. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

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Presenter: Daniel Pollyea, MD, MS
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

Daniel Pollyea, MD, MS, University of Colorado Health, gives a comprehensive overview of what happens when a higher risk MDS patient transitions to AML including the diagnositic criteria, treatment options and outcomes assessments. Dr. Pollyea also reviews some of the most promising treatment options that are in clinical trial and/or new to the treatment space. He also discusses the increasing success rates for older patients who go to transplant as a curative treatment for High Risk MDS and AML. Dr. Pollyea answers a number of patient-submitted questions as well. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amer Zeidan, M.D.
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Amer Zeidan from Yale Cancer Center discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2019 meeting in Orlando, Florida.

Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML.

Presenter: Gail J. Roboz, M.D.
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Gail J. Roboz, M.D.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Gail Roboz from Weill Cornell, discusses the advances in MDS and AML research that was reported at the annual conferences of two major hematology/oncology organizations this summer – the American Society of Clinical Oncology (ASCO) and the European Hematology Association (EHA).

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Elie Traer, MD, PhD
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Elie Traer from OHSU Knight Cancer Institute in Portland, OR will discuss what is refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Traer their questions.

Presenter: Timothy Pardee, MD, PhD
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Timothy Pardee from Wake Forest Baptist Health will discuss the challenges associated with treating AML in older adults and what treatment options are available.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Courtney DiNardo, MD
Topic(s): Acute Myeloid Leukemia (AML)

In the webinar, Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX explains the different mutations found in AML. She discusses how mutations impact prognosis and affect treatment decisions.

Presenter: Daniel Pollyea, MD, MS
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.

Presenter: Thomas LeBlanc, MD, MA
Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Thomas LeBlanc from Duke University Hospital discusses AML - how the diagnosis and treatment decisions impact patients. He provides a basic overview of AML and current treatments.

Presenter: Joshua Sasine, MD, PhD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter:
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families. 

Presenter: Ryan J. Mattison, MD
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).  

Presenter: Michael Savona, MD
Topic(s): Acute Myeloid Leukemia (AML)

Dr Savona explains what options are available for patients with AML outside of transplant. 

Presenter: Jacqueline Garcia, MD
Topic(s): Acute Myeloid Leukemia (AML)

Dr. Jacqueline Garcia describes diagnostic and therapeutic options for AML, or Acute Myeloid Leukemia.

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Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Michael Pulsipher, MD
Topic(s): Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Kasiani Myers, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter:
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families. 

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases

Dr Michael Pulsipher discusses the cognitive, social and physical side effects for children dealing with bone marrow failure diseases. 

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Presenter: Hemant Murthy, MD
Topic(s): Bone Marrow Transplant

Hemant Murthy, MD, Mayo Clinic Jacksonville, Florida, provides a comprehensive overview of the risks and benefits of bone marrow transplant for patients with bone marrow failure disease including aplastic anemia, PNH, MDS and AML. This sessions includes a review of the generalized criteria for eligibility, the potential complications of transplant and long-term outcomes based on ongoing studies. Dr. Murthy also offers hopeful news for older patients who may have thought they were not eligible for transplant but with new treatment protocols may be able to at least consider this option. Dr. Murthy answered a number of patient-submitted questions at the end of the presentation. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: H. Joachim Deeg, MD
Topic(s): Bone Marrow Transplant, COVID-19

In this webinar, Dr. Deeg addresses the pre and post transplant concerns of bone marrow failure patients and their caregivers and reviews the precautions they should be taking to protect their health, particularly during this pandemic.

Our apologies, but this webinar had some technological challenges during the presentation and the sound quality is not ideal. We will also provide a transcript of the session which should provide clarity on the responses from Dr. Deeg to the questions submitted during the Q & A portion of the webinar. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Michael Pulsipher, MD
Topic(s): Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Presenter:
Topic(s): Bone Marrow Transplant

Costa Herbert, RN from Fred Hutchinson Cancer Research Center discusses the transplant process so patients and caregivers can travel the transplant journey with knowledge and confidence. 

This webinar is presented in partnership with Be the Match. 

Presenter: Saurabh Chhabra, MD, MS
Topic(s): Bone Marrow Transplant

In this webinar, Dr. Saurabh Chhabra from The Cancer Center at Froedtert Hospital in Wisconsin will discuss the latest advances in preventing and treating graft-versus-host disease(GVHD). He will also provide a brief overview of GVHD.

Presenter: Melhem Solh, MD
Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Presenter: Melhem Solh, MD
Topic(s): Bone Marrow Transplant

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Matt Kalaycio, MD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.

Presenter: Joshua Sasine, MD, PhD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Presenter:
Topic(s): Bone Marrow Transplant

Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF. 

Presenter:
Topic(s): Bone Marrow Transplant

Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease). 

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Presenter: Mary K. Hughes, MS, RN, CNS, CT
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Mary Hughes, MS, RN, CNS, CT shares coping strategies that patients can use to lessen the fear of disease recurrence as they adjust to life after diagnosis and treatment.

Presenter: Krisstina Gowin, DO
Topic(s): Living Well with Bone Marrow Failure

Dr. Gowin discusses the critical aspects of living well with the overlapping diagnosis of MDS and MPNs. Her presentation includes a scientific assessment of interventions including nutrition, supplements, exercise and meditation.

Presenter: Twyla Jackson, RDN, LD, CNSC
Topic(s): Living Well with Bone Marrow Failure

Twyla Jackson, RDN, LDN, CNSC, Northside Cancer Center, Atlanta, provides an overview of the dietary and nutritional concerns facing patients, families and caregivers dealing with bone marrow failure disease. Ms. Jackson provides evidence-based, scientifically accurate guidance including specific concerns related to potential interactions between certain treatment medications and specific foods. She also provides important information on the use of supplements and a healthy, active lifestyle. Ms. Jackson works closely with hematologists and oncologists in her role at Northside Cancer Center in Atlanta and this presentation includes specific questions from patients at the end. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Joanna M. Myers Casale, RD, CSO
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

Presenter: James Foran, MD
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

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Presenter: Mary K. Hughes, MS, RN, CNS, CT
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Mary Hughes, MS, RN, CNS, CT shares coping strategies that patients can use to lessen the fear of disease recurrence as they adjust to life after diagnosis and treatment.

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Mikkael Sekeres, MD, MS, Isabel Schuermeyer, MD
Topic(s): Managing Your Treatment

Recorded 3/13/20, this webinar features two experts, Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer, who discussed how patients can deal with the outbreak of COVID-19 both physically and emotionally. After their presentation, they answered questions from the live audience.

Presenter: Cate Lockhart, PharmD, PhD
Topic(s): Managing Your Treatment

In this webinar, Cate Lockhart - Executive Director at Biologics and Biosimilars Collective Intelligence Consortium, helps patients and families understand the difference between biologic and biosimilar medications. She discusses the approval process for FDA approval and how biosimiliar medications will impact the future of treating patients.

Presenter: Melhem Solh, MD
Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

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Topic(s): Managing Your Treatment

In this webinar, Susan Berg from the Center for Shared Decision Making at Dartmouth - Hitchcock explain what is shared decision making and how patients/caregivers can work with their medical team to make decisions regarding their healthcare.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Presenter: Joanna M. Myers Casale, RD, CSO
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

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Topic(s): Managing Your Treatment

Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.

Presenter: James Foran, MD
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

Presenter: Ramiro Garzon, MD
Topic(s): Managing Your Treatment

All bone marrow failure disease patients and their families need to understand how to read lab results. This webinar covers all of the basics and answers some of the most common questions. 

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Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

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Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Daniel Weisdorf from the University of Minnesota Clinical and Translational Science Institute will discuss what is a bone marrow transplant and the risks and benefits of a transplant for CLL patients.

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Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Jonathon Cohen from Winship Cancer Institute of Emory University will discuss relapsed CLL- what causes patients to relapse and how to treat relapsed disease. Participants will have the opportunity to ask Dr. Cohen questions.

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Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Matthew Davids will discuss the advances in treating CLL. He will also provide a brief overview of the CLL diagnosis.

Presenter: Casey O'Connell, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

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Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Stephen Oh, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS. 

Presenter: Michael Keng, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

Dr Keng explains myelofibrosis and how it overlaps with other bone marrow failure diseases.