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Watch Recorded Patient Webinars

Presenter: Twyla Jackson, RDN, LD, CNSC
Topic(s): Living Well with Bone Marrow Failure

Twyla Jackson, RDN, LDN, CNSC, Northside Cancer Center, Atlanta, provides an overview of the dietary and nutritional concerns facing patients, families and caregivers dealing with bone marrow failure disease. Ms. Jackson provides evidence-based, scientifically accurate guidance including specific concerns related to potential interactions between certain treatment medications and specific foods. She also provides important information on the use of supplements and a healthy, active lifestyle. Ms. Jackson works closely with hematologists and oncologists in her role at Northside Cancer Center in Atlanta and this presentation includes specific questions from patients at the end. 

Presenter: Veronica Dioverti, MD
Topic(s): COVID-19

Veronica Dioverti Prono, MD, Johns Hopkins School of Medicine , Baltimore, provides an update on the COVID-19 (novel coronavirus) pandemic as it relates to patients, families and caregivers dealing with bone marrow failure disease. Dr. Prono gives practical advise on how to avoid exposure to the virus and answers questions from a live audience. 

Presenter: Timothy Pearman, PhD, Jenny Finkel
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

The COVID-19 pandemic has brought many changes to how  we live our lives,. It has brought uncertainty, altered daily routines, financial pressures, and social isolation.

In this webinar, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga discuss self-care strategies for patients, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. 

Presenter: Amer Zeidan, M.D.
Topic(s): Acute Myeloid Leukemia (AML), Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Amer Zeidan from Yale Cancer Center discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2019 meeting in Orlando, Florida.

Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML.

Presenter: H. Joachim Deeg, MD
Topic(s): Bone Marrow Transplant, COVID-19

In this webinar, Dr. Deeg addresses the pre and post transplant concerns of bone marrow failure patients and their caregivers and reviews the precautions they should be taking to protect their health, particularly during this pandemic.

Our apologies, but this webinar had some technological challenges during the presentation and the sound quality is not ideal. We will also provide a transcript of the session which should provide clarity on the responses from Dr. Deeg to the questions submitted during the Q & A portion of the webinar. 

Presenter: Gail J. Roboz, M.D.
Topic(s): COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This webinar with Gail Roboz, MD, addresses the concerns of high-risk MDS or secondary AML patients and their caregivers and reviews the precautions they should be taking to protect their health. Patients, families and caregiver questions are included at the end of the presentation. 

Presenter: Amy E. DeZern, MD, MHS, Veronica Dioverti, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti address the concerns of bone marrow failure disease patients and their caregivers and review the precautions they should be taking to protect their health.
They also answer participant questions and answers.

Presenter: Inga Hofmann Zhang, MD, PhD, David Margolis, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Myelodysplastic Syndromes (MDS)

Dr. Hofmann and Dr. Margolis will discuss the specific concerns related to COVID-19 for pediatric bone marrow failure patients and their parents, including pre- and post-transplant issues.   

There will be an opportunity for questions and answers via the webinar platform. 

Presenter: Carlos M. De Castro, III, M.D.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Presenter: Mikkael Sekeres, MD, MS, Isabel Schuermeyer, MD
Topic(s): Managing Your Treatment

Recorded 3/13/20, this webinar features two experts, Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer, who discussed how patients can deal with the outbreak of COVID-19 both physically and emotionally. After their presentation, they answered questions from the live audience.

Presenter: Cate Lockhart, PharmD, PhD
Topic(s): Managing Your Treatment

In this webinar, Cate Lockhart - Executive Director at Biologics and Biosimilars Collective Intelligence Consortium, helps patients and families understand the difference between biologic and biosimilar medications. She discusses the approval process for FDA approval and how biosimiliar medications will impact the future of treating patients.

Presenter: Michael Pulsipher, MD
Topic(s): Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Presenter: Michael Pulsipher, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Presenter:
Topic(s): Bone Marrow Transplant

Costa Herbert, RN from Fred Hutchinson Cancer Research Center discusses the transplant process so patients and caregivers can travel the transplant journey with knowledge and confidence. 

This webinar is presented in partnership with Be the Match. 

Presenter: Catherine Lai, MD, MPH
Topic(s): Myelodysplastic Syndromes (MDS)

Dr Catherine Lai, Medstar Georgetown University Hospital Lombardi Comprehensive Cancer Center, discusses the challenges associated with treating MDS in older adults and what treatment options are available. 

Presenter:
Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Daniel Weisdorf from the University of Minnesota Clinical and Translational Science Institute will discuss what is a bone marrow transplant and the risks and benefits of a transplant for CLL patients.

Presenter: Gail J. Roboz, M.D.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Gail Roboz from Weill Cornell, discusses the advances in MDS and AML research that was reported at the annual conferences of two major hematology/oncology organizations this summer – the American Society of Clinical Oncology (ASCO) and the European Hematology Association (EHA).

Presenter: Phil Scheinberg, MD
Topic(s): Aplastic Anemia

During this webinar, Dr. Phillip Scheinberg from Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil discusses the history of Aplastic Anemia - past, current and future thinking of the disease and treatment options.

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Presenter: Michael Burke, MD
Topic(s): Pediatric Bone Marrow Failure Diseases

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

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Presenter: Matt Kalaycio, MD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.

Presenter: Sudipto Mukherjee, MD, MPH
Topic(s): Myelodysplastic Syndromes (MDS)

Updates from the December 2018 convening of the America Society of Hematology on MDS. 

Presenter: Joshua Sasine, MD, PhD
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Presenter: Shyamala Navada, MD
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment. 

Presenter: Amir Fathi, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Stephen Oh, MD
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS. 

Presenter: Ryan J. Mattison, MD
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).  

Presenter: Amer Zeidan, M.D.
Topic(s): Myelodysplastic Syndromes (MDS)

This webinar provides the basic information that every MDS patient and their famlies should know about the disease.

 

Presenter: Steven Gore, M.D.
Topic(s): Myelodysplastic Syndromes (MDS)

Dr Gore provides a plain language review of the most important research presented at the late 2017 Annual Meeting of the American Society of Hematology. 

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