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I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.
I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.
I was your typical 14 year old teenager who always enjoyed spending time with friends and playing sports. On and off for about two years, my parents would take me to see different doctors to figure out why I had aches and pains, stomach issues and fatigue.
There are three types of PRCA:
In myeloproliferative neoplasms (MPN), the bone marrow
Chronic myelomonocytic leukemia (CMML) starts in the bone marrow bone marrow: The soft, spongy tissue inside most bones.
Chronic lymphocytic leukemia (CLL) Chronic lymphocytic l
Cleveland Clinic holds a bone marrow transplant bone marrow transplant: A bone marrow transplant (BMT) is also called a stem cell transplant (SCT
Dartmouth-Hitchcock Norris Cotton Cancer Center holds a blood cancer support group on the second Wednesday of every month from 3:30 to 4:30pm. At the meetings, blood cancer patients and their families will connect with each other and share experiences. Registration is required for you to receive meeting details and login information. To register, please contact - cancersupport@hitchcock.org.
Norris Cotton Cancer Center
One Medical Center Drive
Lebanon, NH 03756
For more information about the group, call (603) 650-7751.
We are pleased to let patients and families know about the LLS support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This group meets on the first Wednesday of every month from 6:30 to 8:00pm. If you would like to join the Sacramento (CA) virtual blood cancer support group, registration is required. Use this link to register and receive the login information to join the group, https://www.llsform.org/ho0999SER/SCM1FSG/index.html.