living with disease

Carlo Dufour, MD

Institution
G. Gaslini Research Children’s Hospital, Genova, Italy
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Pediatric
About
Carlo Dufour works in G.Gaslini Research Children’s Hospital, Genova, Italy, the largest, multi specialist pediatric hospital of the country, where he chairs the Hemo-Onco- HSCT Department and the Hematology Unit where have seat the national Registry of Neutropenia, the national Registry of Alps and related disorders and the national Data Base of Fanconi Anemia. He founded the Marrow Failure Syndromes Study Group within the Italian Pediatric Hemato- Oncology Association (AIEOP). He is author or co-author of over 200 international publications and of various hematology textbook and text book

Transplantation for Aplastic Anemia, MDS, and PNH Adult and Living Well During and After Transplant

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
In this two-part conference session, Dr. Brion Randolph discusses the process of transplant as a modality for treating aplastic anemia, MDS and PNH. In the second part of the session, Dr. Salil Goorha discusses possible complications and side effects of transplant as well as best…

Jaap Jan Boelens, M.D.

Institution
Memorial Sloan Kettering Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Pediatric
About
I am a pediatric hematologic oncologist and Chief of the Pediatric Stem Cell Transplantation and Cellular Therapies Service. I specialize in bone marrow and cord blood transplantation to treat blood diseases in children and young adults. I have particular expertise caring for people with rare diseases, such as lysosomal storage disorders like Hurler’s disease and leukodystrophies like metachromatic leukodystrophy, adrenoleukodystrophy, and Krabbe disease. I am also part of a dedicated team of experts working to develop new treatments for our young patients. At MSK Kids, our goal is to better

Kendall Downer, MD.

Institution
UPMC Presbyterian Shadyside Hospital
Physician Status
available for consultation
About
Kendall Downer, MD is a Clinical Assistant Professor of Medicine in the Department of Medicine, Division of General Internal Medicine, Section of Palliative Care and Medical Ethics at the University of Pittsburgh. She completed medical school training at the Icahn School of Medicine at Mount Sinai, internal medicine residency at the University of Pittsburgh Medical Center and hospice and palliative medicine fellowship at the University of Alabama at Birmingham. Her clinical responsibilities include providing inpatient Supportive and Palliative Care consultation at UPMC Presbyterian and

Uma Borate, MBBS

Institution
The Ohio State University Comprehensive Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
About
I am a hematologist specializing in the treatment of myelodysplastic syndromes (MDS), acute myeloid leukemia (AML), myeloproliferative neoplasms (MPN) and clonal cytopenias of unknown significance. I received my Master of Science in pathobiology and molecular medicine from the University of Cincinnati, and completed a fellowship in hematology/oncology at the University of Alabama. As a member of the Leukemia Research Program at the OSUCCC – James, my clinical and translational research focus is on novel therapeutics in myeloid diseases, with a special focus in disease progression from

Aplastic Anemia and Non-Transplant Therapies

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Topic(s)
Aplastic Anemia
Presenter(s)
Taha Bat, MD
Patients may learn about a variety of treatments for aplastic anemia. Sometimes the preference will be a non-transplant treatment. This webinar, which includes questions from the live audience at the end, describes the types of treatments and why each may be considered.

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