living with disease

Patients With MPNs Must Be Honest About Their Symptoms, Says Expert

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It is incredibly important that patients with MPNs inform their health care team of any symptoms they are experiencing, according to an expert from The Mays Cancer Center at UT Health San Antonio MD Anderson Cancer Center. Because patients with essential thrombocythemia (ET) or…

Ask the Pediatric Expert

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Joseph Oved, MD
Dr. Joseph Oved answers questions from participants. The webinar covers most of the most pressing questions from parents about the disease and treatment of their child with bone marrow failure disease.

VEXAS Syndrome

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Topic(s)
Myelodysplastic Syndromes (MDS)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
David Beck, MD, PhD
In this webinar, Dr. David Beck, MD, PhD and Anna Cantor, MA, MS, CGC, discuss VEXAS syndrome which is a newly discovered auto-inflammatory condition affecting older adults. VEXAS syndrome often overlaps with myelodysplastic syndromes (MDS) with autoimmune disorders (AD). The…

Suresh Balasubramanian

Institution
Karmanos Cancer Institute
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pure Red Cell Aplasia (PRCA)
About
Dr. Balasubramanian completed his medical training at Madras Medical College in India. His interest in treating malignant hematology patients started in his advanced training in Singapore in the Department of Hematology and Bone Marrow Transplant. He was intrigued by the advancement of cancer genetics and its application in the development of novel therapeutics. He strongly believes in the concept of being a physician-scientist. He completed a year of clinical research fellowship in Neuro-Oncology at Cleveland Clinic, where he investigated the role of EGFR mutations and ALK rearrangement in

Catherine J. Lee, MD

Institution
Fred Hutchinson Cancer Research Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
About
Dr. Catherine Lee's clinical expertise is in Blood and Marrow Transplantation (BMT) & Cellular Therapy. She specializes in autologous and allogeneic hematopoietic cell transplants for the treatment of malignant and benign hematologic diseases in adult patients. She also directs the clinical cellular therapy program and provides both standard-of-care cellular therapy treatments and those being tested in clinical trials. Furthermore, she leads the Chronic Graft-versus-Host Disease/Long-Term Follow-Up Program for patients who have received hematopoietic cell transplantation or other immune

Advances in Treatment of PNH

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jaroslaw Maciejewski, MD, PhD
In this webinar, Dr. Jaroslaw Maciejewski discusses the recent advances in treating PNH including treatments recently approved as well as what's in the pipeline. The recording includes the question and answer section.

Living With Bone Marrow Failure Diseases - 2022 San Antonio Patient & Family Virtual Conference

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Krisstina Gowin, DO
In this conference session, Dr. Krisstina Gowin DO discusses best practices when living with bone marrow failure diseases.
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