living with disease
Updates from ASH22 on MDS and AML
A Mother's Message of Courage: Marie-Eve Shares Milan's Story
My name is Marie-Eve. I’m the mother of 3 boys, Milan (17), Nando (14), and Kirill (12). In early 2021, I’d been noticing marks on my oldest son’s body — undeniably and inexplicably large bruises — as big as full moons. My mind would spin in a million different directions, trying to convince myself nothing was amiss. Milan kept telling me he was fine. “I’m okay, mom. Stop worrying.” Then, one morning, he left for the hockey rink, sopping up blood from his nose and gums, for no apparent reason. It was March 11, 2021.
Aplastic Anemia Taught me to Nourish my Body and my Spirit
In Sept 2021, I had my stillborn son, Nolan. My blood count levels at that time were normal (250 platelets, Hemoglobin Hemoglobin: A protein in the red blood cells.
David's Journey - Grandfather Responds to Treatment for Aplastic Anemia
Most of my working life was associated with the printing industry. I was apprenticed to printing way back in 1962. I then worked as a printer and later as a teacher in vocational education at the School of Printing and Graphic Arts in Sydney, Australia.
