2023 Omaha Patient and Family Hybrid Conference
Here are the session recordings and the presentations for the 2023 Omaha Patient and Family Hybrid Conference.
diagnosis
Ask the AML Expert
Topic(s)
Acute Myeloid Leukemia (AML)
Presenter(s)
Salman Fazal, MD
Dr. Salman Fazal will gives a brief AML overview and then answers questions from participants. The question and answer session is recorded here.
Alicia Rovó, MD
Institution
Bern University Hospital
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Graft Versus Host Disease (GVHD)
About
Alicia Rovó is a Senior Attending/ Deputy Phychian-in-chief and Head of the Clinial Hematology Unit at Bern University Hospital in Switzerland. Her top areas of expertise are Aplastic Anemia, Anemia, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Marrow Aspiration.
Real-World Validation of Molecular International Prognostic Scoring System for Myelodysplastic Syndromes
Original Publication Date
Article Source
External Web Content
ABSTRACT PURPOSE Myelodysplastic syndromes (MDS) are heterogeneous myeloid neoplasms in which a risk-adapted treatment strategy is needed. Recently, a new clinical-molecular prognostic model, the Molecular International Prognostic Scoring System (IPSS-M) was proposed to improve…
A Mother's Message of Courage: Marie-Eve Shares Milan's Story
My name is Marie-Eve. I’m the mother of 3 boys, Milan (17), Nando (14), and Kirill (12). In early 2021, I’d been noticing marks on my oldest son’s body — undeniably and inexplicably large bruises — as big as full moons. My mind would spin in a million different directions, trying to convince myself nothing was amiss. Milan kept telling me he was fine. “I’m okay, mom. Stop worrying.” Then, one morning, he left for the hockey rink, sopping up blood from his nose and gums, for no apparent reason. It was March 11, 2021.
Aplastic Anemia Taught me to Nourish my Body and my Spirit
In Sept 2021, I had my stillborn son, Nolan. My blood count levels at that time were normal (250 platelets, Hemoglobin Hemoglobin: A protein in the red blood cells.
David's Journey - Grandfather Responds to Treatment for Aplastic Anemia
Most of my working life was associated with the printing industry. I was apprenticed to printing way back in 1962. I then worked as a printer and later as a teacher in vocational education at the School of Printing and Graphic Arts in Sydney, Australia.
2022 Miami Patient and Family Hybrid Conference: PNH
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Damian Laber, MD
Dr. Damian Laber anticipates all your questions about PNH, or Paroxysmal Nocturnal Hemoglobinuria, in this session recording.
Damian Laber, MD
Institution
Moffit Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Laber is a hematologist/oncologist and senior member with Moffitt Medical Group in the Satellite and Community Oncology Department practicing at Tampa General Hospital and Moffitt international Plaza. The MMG faculty at TGH provides invaluable oncology services to the large patient population of this leading regional hospital. Dr. Laber earned his M.D. at the University of Buenos Aires, Argentina. He completed his residency in internal medicine at Cleveland Clinic Health System, and was designated Chief Resident during his term at Hillcrest and Southpointe Hospitals. Dr. Laber’s research
2022 Miami Patient and Family Hybrid Conference - Low-Risk MDS
Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Mikkael Sekeres, MD, MS
Mikkael Sekeres, MD, MS, explains Low-Risk MDS, or Myelodysplastic Syndromes, in this session. This presentation reveals answers to most questions that patients and families have.