pediatric

Pediatric Parents Virtual Support Group

Event Date:

Tue, 03/08/2022 - 7:30pm (EST)

This virtual support group is designed to support pediatric parents whose children have been diagnosed with

Bone Marrow Disease(s):

Research Identifies How Gene Mechanisms Influence Pediatric MDS

Each year, approximately 1 in every 1 million infants is diagnosed with pediatric

Genetic Testing for Bone Marrow Failure Diseases

In this webinar, Dr. Jadee Neff will discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for

Jadee Neff, M.D., Ph.D., FCAP

Neff, Jadee

Assistant Professor of Pathology

Duke Cancer Center

Dr. Jadee Neff is a board-certified Pathologist who sees patients at Duke Cancer Center, Duke University Hospital and Duke Eye Center. She obtained her MD and PhD degrees at the Mayo Clinic College of Medicine and did her AP/CP pathology residency at Mayo Clinic. As a diagnostic hematopathologist and molecular genetic pathologist, her clinical interests are focused on the histologic examination of tissue and

Online Profile:

Pediatric PNH - Diagnosis and Treatment

In this webinar, Dr. Satheesh Chonat will discuss what is PNH, how PNH is diagnosed and what treatment options are available to pediatric patients. After the presentation, Dr. Chonat will answer questions from participants. Advance questions can be submitted to help@aamds.org.

Satheesh Chonat, MD

Chonat, Satheesh

Pediatric Hematologist and Oncologist

Children’s Healthcare of Atlanta

Satheesh Chonat, MD, is a Pediatric Hematologist and

Pediatric Parent Virtual Support Group

Event Date:

Tue, 02/08/2022 - 7:30pm (EST)

AAMDSIF is please to announce a support group for pediatric parents whose children have been diagnosed with

Bone Marrow Disease(s):

pediatric

Clinical Trials and Children

Until recently, children were rarely included in studies of medical treatments. As a result, much is still unknown about how children respond to drugs, some biologics (such as gene therapy) and medical devices. According to the U.S. Food and Drug Administration (FDA), only 20-30% of approved drugs have actually been labeled for use in children.

Update on Alayna: Loving Kindergarten, but Mom still worries

Person's Name:

Ashley and Alayna Numbers

Alayna is doing all the normal activities for a child her age. Learning to read, making many friends, and taking gymnastics are parts of ordinary life for kindergarteners. She’s looking forward to soccer and more sports when pandemic life eases. Few signs remain that she battled

Bone Marrow Disease(s):

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Clinical Trials in Depth

Clinical trials, also called research studies, may offer good treatment options for some people with

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