Questions to Ask Your Healthcare Team | Aplastic Anemia & MDS International Foundation

Questions to Ask Your Healthcare Team

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About the Disease

  • What subtype of my disease do I have?
  • How severe is my disease?
  • What is my prognosis?
  • What have other people with a similar disease and treatment gone through?

About Treatment

  • What are all my treatment options?
  • What treatment option do you recommend for me? Why?
  • Will I be getting more than one treatment?
  • How does this treatment work?
  • How likely am I to get better with the treatment?
  • How often is this treatment given?
  • Has this treatment been used a lot or is it a new or experimental treatment?
  • Does the treatment hurt?
  • When can I expect the treatment to start working? When/how will I know if it is working?
  • What are some of the possible side effects I should be aware of? Are there long-term side effects?
  • What happens if the treatment doesn't work?
  • Where will I be getting the treatment (at your office, at a clinic, in the hospital)?
  • Will I get better?
  • Do you have tips for staying on the treatment plan? (Some people report they feel worse on treatment in the beginning, and then feel better after a few weeks or months. This can be discouraging, yet it is a common side effect of some of the medicines.)
  • How long do I need to take the medicine? What happens if I go off this medicine before the treatment cycle is over?
  • Will this treatment be covered by my insurance plan? If not, what is the cost if I choose to pay out of pocket? Are there other treatments can I consider?
  • Can my disease return, even after successful treatment?

About Prescription Drug Treatment

  • Has the drug been approved by the FDA (U.S. Food and Drug Administration) for treating my disease?
  • How do I take the medicine? How often do I need to take it?
  • How long will I need to take the medicine?
  • How does this treatment work?
  • What are the common side effects of this medicine? What are the most severe side effects? What can be done to control them?
  • What are the long-term side effects of this medicine?
  • How much does it cost? Is it covered by my insurance?
  • Can this prescription drug cause interactions or side effects with any over-the-counter medications or supplements that I take?

For more questions to ask healthcare providers, visit the Questions Are the Answer Web site developed by the Agency for Healthcare Research and Quality. At this site, you can create a customized list of questions to take with you to your next doctor's visit.