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myelodysplastic syndromes (MDS)

MDS Virtual Patient Support Group

Event Date: 
Sat, 03/12/2022 - 1:00pm (EST)

This virtual support group is designed to support patients diagnosed with MDS. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants.

Transplant Virtual Support Group

Event Date: 
Wed, 03/16/2022 - 5:30pm (EDT)

This virtual support group is designed to support patients who have undergone transplant or who are considering this as a curative option for

Science Simplified: What is a Natural History Study?

Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr. Brown has over a decade of experience in neurodevelopmental research and is currently the Scientific Director for TESS Research Foundation. Please reach out to her at tanya@tessfoundation.org if you have questions or comments.

Resuscitating a Dying Marrow: Emerging Concepts and Treatment Advances in Myeloid Malignancies

We are excited to announce a complimentary, CME-certified on-demand webcast series Resuscitating a Dying Marrow: Emerging Concepts and Treatment Advances in Myeloid Malignancies.  This enduring material was recorded during the Virtual Friday Satellite Symposium held on December 10th, 2021 preceding the 63rd Annual ASH Meeting and Exposition.

Pediatric Parents Virtual Support Group

Event Date: 
Tue, 03/08/2022 - 7:30pm (EST)

This virtual support group is designed to support pediatric parents whose children have been diagnosed with

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