Patient and Family Conferences
AAMDSIF hosts Patient and Family Conferences around the United States each year.
Aplastic Anemia
Surviving Loss: A Journey from Losing Homeland to Surviving Bone Marrow Failure
Hello this is Sahar, a woman who fled her homeland followed by the failure of her bone marrow bone marrow: The soft, spongy tissue inside most bones.
Lisa: Finding the Light
Lisa loved her work.
As a Senior Teacher in the UK, she dedicated herself, her time, and her passion to her job. An average week saw her working 70 hours.
Following a beach holiday in the Canary Islands, she developed a strange rash on the top of her feet. A colleague urged her to go to the doctor.
AAMDSIF 40th Anniversary Summit
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Since it was founded in 1983, AAMDSIF has partnered with clinicians and researchers to identify knowledge gaps in diagnosing and treating bone marrow failure and the research priorities needed to advance the field. In honor of the AAMDSIF 40th Anniversary, this hybrid Summit will…
2024 Chicago Patient and Family Conference
Watch these sessions 2024 Patient and Family Conference, held in partnership with the University of Chicago.
2024 Seattle Patient and Family Conference
Watch these recordings from the Conference Sessions:
2024 Los Angeles Patient and Family Conference
2024 Patient and Family Conference in Los Angeles
Session Recordings:
Transplant for Aplastic Anemia and MDS
Aplastic Anemia Patient Panel
Topic(s)
Aplastic Anemia
In this webinar, patients diagnosed with Aplastic Anemia discuss their patient journey and share their personal experiences.
Integrative Medicine
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Nathan R. Handley, MD
In this webinar, Dr. Nathan Handley discusses what is integrative medicine and how it can be part of your treatment plan. He answers audience questions in the recording.
Caregivers - Take Care but HOW????
Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.