pediatric patient / parent
Community Rallied around Braeden's Family as he Fought Aplastic Anemia --- Now Family "Pays it Forward"
Person's Name:
Braeden Hahn
“Hey, Braeden, we need to go.”
Little did 12-year-old Braden understand that he was headed towards hospital admission.
Earlier that day, Braden nearly passed out on the basketball court. He was a happy, athletic child, who excelled at several sports. His mom, Becki, took him for blood work.
Later, Braeden’s parents heard from the doctor’s office: take him to the Emergency Department now. That’s when Braeden’s dad came to pick him up from his friend’s house, where he’d been playing normally.
Bone Marrow Disease(s):
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MY 12-YEAR BATTLE WITH MDS - By Jane Biehl PhD
Person's Name:
Jane Biehl, Ph.D.
I had an article published in 2017 by AAMDSIF and was asked to update everyone. I will briefly reiterate the first part of my journey and then move forward!
Bone Marrow Disease(s):
Content source:
Dr. Eunice Wang discusses Secondary MDS
Dr. Eunice Wang explains the origin and treatment of secondary MDS. Dr. Wang is the Chief of the Leukemia Service at Roswell Park Comprehensive Center.
Haploidentical BMT for severe aplastic anemia with intensive GVHD prophylaxis including posttransplant cyclophosphamide
Key Points
Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19)
This content has been prepared in consultation with AAMDSIF Medical Advisory Board Chair Mikkael Sekeres MD, MS of Sylvester Comprehensive Cancer Center, University of Miami and Co-Chair Olatoyosi Odenike MD of the University of Chicago with additional review by Amy DeZern, MD, Johns Hopkins and Carlos De Castro, MD, Duke. ( November 2022)
Joseph Oved, MD
Oved, Joseph
Assistant Professor
Memorial Sloan-Kettering Cancer Center
Dr. Oved completed scientific and clinical training that included tenures as a Fulbright Fellow with the Weizmann Institute in Israel, the NYU School of Medicine with two years as a Howard Hughes Medical Fellow, followed by a residency in Pediatrics at NYP Weill Cornell Medical College. During his residency, he developed an interest in more translational questions working with Dr.
Online Profile:
A Teenager with MDS? His Mom Explains
Terri shares the journey of Thomas' surprise diagnosis, rigorous treatment, and wonderful survivorship in this conversation.
Leigh Ann and her son are both successful transplant patients after MDS!
10 years after diagnosis, Leigh Ann needed a bone marrow transplant. Five years later, her son did, too! Listen to her story of different family members having the same rare disease, Myelodysplastic Syndromes, here.
How a Delay in Treatment nearly Cost her Life - Veronica's Story
Person's Name:
Veronica Ruiz
Veronica learned that delaying treatment was not a good idea.
That delay nearly ended her life.
Bone Marrow Disease(s):
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