pediatric patient / parent
Two transplants mean new life for Derek: a story of high-risk MDS, perseverance, and advocacy
Derek was turning 45 and had noticed occasional swelling in his legs. Due to a family history of heart disease, his wife, Amy, was uneasy, noticing this symptom. She encouraged Derek to see his doctor for more thorough testing.
Ravulizumab-cwvz
Ravulizumab-cwvz Ravulizumab-cwvz: Ravulizumab-cwvz (Ultomiris®) is a drug approved by the U.S. Food and Drug Administration (FDA) in 2018 to treat PNH.
Providence (RI) LLS Blood Cancer Support Group
We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This group meets on the first Wednesday of every month from 5:30pm-7:00pm. The group is facilitated by Jim Willsey, Ellie Colins, Susan Garland and Diane Passantino. If you would like to join the support group or want more information, please contact LLS, (401) 943-8888.
Lansing (MI) LLS Virtual Blood Cancer Support Group
We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This group meets on the the second Thursday of the month from 6:00pm - 7:00pm at Breslin Cancer Center 401 W Greenlawn Avenue Lansing, MI 48910. The group is facilitated by Robin Willner. There is no charge to participate in this group but pre-registration is required, https://www.llsform.org/ho0999SER/LAN1FSG/index.html