patient

Fatigue Management

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Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Timothy Pearman, PhD
Jenny Finkel
In this webinar, Dr. Tim Pearman discusses fatigue and how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level. This was an interactive session.

Advances in Treating PNH

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jamile M. Shammo, MD, FASCP, FACP
In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.

Post-Transplant Relapse - MDS

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Topic(s)
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.

Safe, Successful Pregnancies Possible After AlloHCT

Original Publication Date
Article Source
External Web Content
Findings refute former consensus that pregnancies post-transplant are nearly impossible, highlight need for increased fertility counseling (WASHINGTON, July 15, 2024) — Despite treatment-related fertility challenges, female patients can become pregnant and give birth to healthy…

2024 EHA-ASCO Research Updates for MDS and AML

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Abhay Singh, MD, MPH
In this webinar, Dr. Abhay Singh discusses the latest MDS and AML research presented at the 2024 EHA and ASCO meetings. This is an advanced educational presentation.

Teen Athlete's Normal Life Interrupted by Severe Aplastic Anemia and Lengthy Treatment

“You must go to Children’s Hospital now.”

Ninth grader Patrick McLaughlin was surprised, but followed his mom’s lead, who calmly drove to the Emergency Department while disguising her fear and confusion.

Earlier that week, while Ellie was on a business trip, her elder son, Liam, called. “Mom, Paddy’s still sleeping after early dismissal.”  It was 8:30pm. At that moment, she knew that she needed to take him to the doctor.  She flew home as soon as she could, picked Patrick up at track and field workout, and dashed to the pediatrician’s office. 

PNH from the 2024 Philadelphia Patient and Family Conference

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria. Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.
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